First off, I'm new to the forum. I'm missing work today because my UC is so bad that I started throwing up (i may be in for another hospital visit soon because of it) so i deceided to fiddle around online to see what I could find and found this site.
What I want to know is if anyone here uses natural remedies for their colitis.
I'm allergic to all the prescriptions I've tried. First I was put on Casana suppositories because my UC was mild and in the rectum and sigmod (sp?) colon. Turns out I'm allergic to mesalmines and sulfasalazines. I couldn't breath if I so much as tried to stand up while on Casana. Next i tried hydrocortisone enemas. Didn't do anything whatsoever and since its a steriod I was told to stop taking it after 3 weeks. Next went to Asacol. I was completely intolerant to it. I was only taking one pill a day and became so constipated that I couldn't go to the bathroom for a week! Shortly after stopping the asacol I got really sick missed a month of school and spent a week in the hospital. I was on prednisone, flagyl and one other antibotic while I was in the hospital in IV form. I continues all 3 in pills after my release and discovered that pill Flagyl is bad for me and ended up back in the hospital for a day. After being released again, I continued the prednisone in a tapering off dose (started at 40mg a day) and begain 6-MP therapy after my enzyme tests said I was ok to go. As I tapered off the pred. I started to get sick again. One day I became violently ill and had to go to the ER. Turns out I was intolerant to the 6-MP dispite the tests results and it gave me pancreatitis. So that leaves me here, with no meds after 7 months because I refuse Remcaid because my doctor said it has a high risk of causing lymphoma and with my luck so far, I'd get it. I was ok for about one month after my release from the hospital with pancreatitis while I was still tapering off the pred. Pred. is the only thing that works for me, but the long term side affects are not worth taking it too me. (especially since I took it for 5 years in low doses from time to time for cystic acne)
I feel like I'm out of luck. I began taking herbs to help a few months ago and they were helping, but after I started school again (my last quarter) I started to get stressed and my UC got out of control again. I've already missed the max amount of 2 of my classes, but i feel that if I don't start getting better I may need to take a trip to the hospital again. I'm considering trying a gulten free diet. I tested negative for celiac but that doesn't mean i'm not still allergic to gulten. Does anyone have any ideas, suggestions, comments about what I could do?
btw the supplements I'm currently taking are:
Boswellia - 350mg 2-3 times a day
Aloe Vera gel -100mg 2 times a day
Omega 3 - 1000mg 2 times a day
Probiotics - 1000mg 2 times a day
L-Lysine 500 mg 1 a day (for mouth ulcers caused by uncontrolled UC)
diagnosed Dec 2006 and flaring since with 2 hospital stays (one for 6mp allergic reaction)