Nights seem to be worse for me, anyone else?

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/11/2007 7:54 AM (GMT -7)   
I don't know why but I seem to be getting up more at night lately to have a bm, every couple of hours or last night every hour.  This might be stupid but maybe I am eating to much at dinner and it is that what is causing me to go more (more food = more bm's?)  During the day I seem to get a few hours (and yesterday it was a full 8 hours during the day w/no bm - woo hoo!).  I still have to go about 4 times after getting up before I leave the house.
Beth, 32
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


jacqueline s
New Member


Date Joined Oct 2007
Total Posts : 1
   Posted 10/11/2007 8:19 AM (GMT -7)   
I agree, nights are worse for me.  Usually make it through to the early hours before dashing to the loo then calms down by mid morning.  Depends if night medication stays put for a few hours!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/11/2007 2:13 PM (GMT -7)   
Most people here complain about mornings being the most active time (myself included), what's the last time of the day/evening you eat before you're going to bed and what are you typically eating as your last meal/snack before you go to bed?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 10/11/2007 2:56 PM (GMT -7)   

When I'm flaring - the nights are the absolute worst for me!  I can't get through the night without running to the toilet many - many - many times.  Some nights I even napped on the bathroom floor in between toilet runs - didn't pay to go back to bed.

My doc said the reason for this is that I used to eat my main meal in the evening.  Mornings I was still running - early afternoon I was either sleeping to make up from the night or too nauseated to think of food.  The only time I could tolerate food was in the evening.  So there was the vicious cycle.  He suggested that I try to eat my main meal earlier in the day - which should hopefully send me to the bathroom earlier and allow me to sleep through the night.  Honestly - it didn't work for me.  I started sleeping through the night as the meds started working and my colitis calmed down.

Good luck.


KTM


kris2336
Regular Member


Date Joined Sep 2007
Total Posts : 28
   Posted 10/11/2007 3:27 PM (GMT -7)   

Nights are the worst for me when I am flaring, too.  I can sometimes go from lunchtime or so until mid-evening or bedtime without a lot of problems.  The minute I lay down, however, it's all over.  Before I went to the hospital last week, I was getting up 10-12 times a night...sometimes every 15-20 minutes. 

I continue to have a few more problems - maybe 4-5 times - in the morning after I get up, and then the afternoon break again.

My doc never said anything about eating at night, though I was usually not hungry enough to have much in the evenings anyway.

Kris2336


 
 
 


Sicktree
Regular Member


Date Joined Jul 2007
Total Posts : 82
   Posted 10/11/2007 3:57 PM (GMT -7)   
Both nights and mornings suck for me. And any time I'm driving.
28 yr old female
Ulcerative Colitis-left sided
Diagnosed Summer 2006
Fish oil, probiotics, aloe vera juice
No coffee, no alcohol, no popcorn
(got cocky during remission, now know this is probably for life)
Never taken UC meds
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 10/11/2007 7:18 PM (GMT -7)   
nights are the worst for me definitely. whether or not i eat a big meal, small meal or anything at all.

do any of you also the issue of the second you turn over onto your side or something, BAM straight to the can?
so weird. i mostly try to lay on my back and not move if possible.
if my husband turns over and bounces the bed, BAM straight to the can.

bugger it all! i am awake like every hour, in the can for 30 minutes of it and then lie awake trying to fall asleep for another 30 minutes and 15 minutes later im awake again to go to the can for 30 minutes .... and on and on and on...

will it ever end???!!!???!!!!!

barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 464
   Posted 10/12/2007 2:55 AM (GMT -7)   
kazzygirl
 
OMG - Do i know how you feel..  I too cannot turn sides in bed - if I do - then it's straight to the toilet for a BM.  Its so annoying!!  I can sleep all night without a a bm if I sleep on my back and not move, but if I do that, I get very uncomfortable and by the morning I feel terrible.  my natural sleeping position is on my side and I really miss not being able to sleep that way!!! 
Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg
 


UCisNOFUN
Regular Member


Date Joined Sep 2007
Total Posts : 34
   Posted 10/12/2007 4:33 AM (GMT -7)   
I have noticed this too. My urgency kicks in to high gear at night. Im thinking its because we are lying down. Somehow that position makes you wanna go. I had a colonoscopy Monday and I was totally emptied out, or so I thought. As soon I went from laying on my back on the hospital cot to laying on my side, I had to go...but I was already hooked up to everything and minutes from my procedure.
At night I usually notice urgency when changing positions. I sleep on my side and when I roll from one side to the other, the urgency hits my pretty strong. There has to be something about the pressure on the colon or something???
I swear, sometimes I feel like eating like a bird is the way to go, but I use food to "cope" so I have trouble with that, plus the prednisone meakes me hungry.
 I was diagnosed with U.C. in early 2007. I am 30, single and no kids.
I am currently taking 4800 mgs of Lialda, 100 mgs of Imuran, 1000 mgs Canasa, 10 mgs of Prednisone temporarily(1 more week).
Also I take:Propecia(hair loss), Trentenoin(acne), Paxil(depression), Allegra(allergies), Advair&albuterol(asthma), multi-vitamins, b-complex, flax oil and biotin.
I eat a vegan diet.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/12/2007 6:24 AM (GMT -7)   
OMG! Yes, I do eat my main meal at night (chicken or pork usually, red meat 1xweek w/veg and starch) and do snack at night too (I love popsicles). Also, when I lay down if I turn to my side which I normally sleep on my back or my side and move during the night, I have to go then too. And when my husband goes to bed after me and wakes me up (i'm a light sleeper) I have to go then to. I don't know if it's the stuff in my colon being moved around and upsetting really ulcerated parts of it and that makes me go?? I took some tylenol pm last night and only got up twice for bm's......I had to sleep, I hadn't slept well in weeks and now I feel like I have a tylenol hangover, though I took it at 11pm when my husband woke me up, I had fallen asleep unintentionally earlier.
Beth, 32
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


carm
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 10/20/2007 12:48 PM (GMT -7)   
Hi Beth, The worse time for me is also the night. I usually wake  every hour. But the days have beeb terrible for me also going every 30 mins. I was diagnoses 10 years ago and did well until about 1 year ago, I am a mess now Thinking about trying Humera. Remicade  stopped woring after 6 months.    Carmel

gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 10/21/2007 6:05 AM (GMT -7)   
my doc has been involved in a ton of research. they have actually researched this! i can't remeber exactly what is going on, but there is something that the body actually does even to a normal person in the middle of the night. a "normal" person doesn't typically respond to it and can sleep throught it. the research showed the majority were up around the 2 a.m. hour.....doesn't help us, but maybe lets us know that we didn't necessarily eat anything wrong, etc
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/21/2007 10:27 AM (GMT -7)   
Probably having IBD makes the brain-gut sensory that much more sensitive...and definitely whacked out.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 10/22/2007 7:20 PM (GMT -7)   
With a bad flare, it doesn't seem to matter the time of day, but as things got better, I found the mornings were the hardest. Then about a couple weeks ago or so I found that the day time was easier and the night time was horrific. So I totally sympothize with you Beth and everyone else waking up several times at night. The only thing I can imagine is that maybe there is something going on with diet at certain times of the day or maybe when supplements are taken--who knows?! Laying on my side is really sensitive too and if I take a sip of water before I lay down again, well I once I do lay down I am right back up again to the toliet.

One thing makes things so much better and I highly recommend is buying some memory foam for your bed, even if it is just a couple inches that goes on top--it is so comfortable--I don't know why I waited this long to get it. It would probably help couples because it conforms to your body and you don't notice so much when someone else lays down. So if you can fork out $100-200 (probably much more if you get it much thicker), it could be well worth it--I noticed I am sleeping much better.
Pancolitis '04
Yet to go into remission, Flare-up since Aug 12th and still atempting to work in the midst of it
On Lialda (2/dy), probiotics, Oriental Medical Tea & Prescribed Diet, Greens+, Fish Oil


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/23/2007 8:56 AM (GMT -7)   
Very true...when having a severe flare then it'll go around the clock, I always slept with a towel under my butt for those possible accidents, beats changing the entire bedding in the middle of the night...especially when the accidents happen frequently through one night alone.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 11/6/2007 11:33 PM (GMT -7)   
I find between 2am to an hour after I get out of bed, and between 10pm and midnight are the worst for me. I have only JUST been able to start sleeping on my front and sides again and it has been wonderful. I have found constantly having to lie on my back left me with a sore spine during the day.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 11/6/2007 11:48 PM (GMT -7)   
Beth...are you using the enema at night or in the morning? When do you take the pred?

If you use a foam enema....maybe do it after your morning bms or use before you have supper rather than at bedtime.

I suggest you ask the doc for dicyclomine...it's an antispasmodic and smooth muscle relaxant...will help with gut spasming and maybe the urge to go at night..take it a few hours before bedtime.

You might also consider to take probiotics and maybe a fibre supplement to help bulk up the stool a bit.

Are you at least improving since being on the pred?

As well....check out the popsicles ingredients...what's listed on them?

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/7/2007 11:28 AM (GMT -7)   
Hi Quincy,

I am doing much better, now going 2 to 5 times a day in the past week (just 2 times a day in the past few days) and as of last week have not been getting up in the middle of the night to have a bm. I haven't had any blood in almost two weeks and my bm's are almost fully formed. The past few days have been good, but I am not out of the woods yet, still deciding on the best course of treatments..

the popsicle's are Edy's (all natural) and I'll double check the ingredients to make sure (who knows what their 'all natural' really means!). I have cut out a lot of prepared foods, artificial sweetners, soda and caffeine since my big flare started and not sure how much that has all helped but believe it's healthier anyway.

How are you doing?
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

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