Nights seem to be worse for me, anyone else?

I agree, nights are worse for me.  Usually make it through to the early hours before dashing to the loo then calms down by mid morning.  Depends if night medication stays put for a few hours!

When I'm flaring - the nights are the absolute worst for me!  I can't get through the night without running to the toilet many - many - many times.  Some nights I even napped on the bathroom floor in between toilet runs - didn't pay to go back to bed.

My doc said the reason for this is that I used to eat my main meal in the evening.  Mornings I was still running - early afternoon I was either sleeping to make up from the night or too nauseated to think of food.  The only time I could tolerate food was in the evening.  So there was the vicious cycle.  He suggested that I try to eat my main meal earlier in the day - which should hopefully send me to the bathroom earlier and allow me to sleep through the night.  Honestly - it didn't work for me.  I started sleeping through the night as the meds started working and my colitis calmed down.

Good luck.

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KTM

Both nights and mornings suck for me. And any time I'm driving.

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28 yr old female

Ulcerative Colitis-left sided

Diagnosed Summer 2006

Fish oil, probiotics, aloe vera juice

No coffee, no alcohol, no popcorn

(got cocky during remission, now know this is probably for life)

Never taken UC meds

kazzygirl

OMG - Do i know how you feel..  I too cannot turn sides in bed - if I do - then it's straight to the toilet for a BM.  Its so annoying!!  I can sleep all night without a a bm if I sleep on my back and not move, but if I do that, I get very uncomfortable and by the morning I feel terrible.  my natural sleeping position is on my side and I really miss not being able to sleep that way!!! 

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Back on Pred - 8mg - Steroid Dependent :-(

Azathioprine 150mg

Actonel 35mg

Predfoam Enema

VSL #3 with Activia Yoghurt
EPA Fish Oils

Various Homeopathic meds

Asacol x 9

Remicade every 8 weeks  (Stopped working)

Aloe Vera Lily of the Desert Juice  Gave me the worst D !

Primadophilus Reuteri Probiotic

Prograf Tacrolimus 4mg

 

OMG! Yes, I do eat my main meal at night (chicken or pork usually, red meat 1xweek w/veg and starch) and do snack at night too (I love popsicles). Also, when I lay down if I turn to my side which I normally sleep on my back or my side and move during the night, I have to go then too. And when my husband goes to bed after me and wakes me up (i'm a light sleeper) I have to go then to. I don't know if it's the stuff in my colon being moved around and upsetting really ulcerated parts of it and that makes me go?? I took some tylenol pm last night and only got up twice for bm's......I had to sleep, I hadn't slept well in weeks and now I feel like I have a tylenol hangover, though I took it at 11pm when my husband woke me up, I had fallen asleep unintentionally earlier.

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Beth, 32

UC Diagnosed March 2000

Hydrocortisone enemas 1xday

Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.

Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007

Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

my doc has been involved in a ton of research. they have actually researched this! i can't remeber exactly what is going on, but there is something that the body actually does even to a normal person in the middle of the night. a "normal" person doesn't typically respond to it and can sleep throught it. the research showed the majority were up around the 2 a.m. hour.....doesn't help us, but maybe lets us know that we didn't necessarily eat anything wrong, etc

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Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.

Deciding whether or not to have surgery at this time.

With a bad flare, it doesn't seem to matter the time of day, but as things got better, I found the mornings were the hardest. Then about a couple weeks ago or so I found that the day time was easier and the night time was horrific. So I totally sympothize with you Beth and everyone else waking up several times at night. The only thing I can imagine is that maybe there is something going on with diet at certain times of the day or maybe when supplements are taken--who knows?! Laying on my side is really sensitive too and if I take a sip of water before I lay down again, well I once I do lay down I am right back up again to the toliet.

One thing makes things so much better and I highly recommend is buying some memory foam for your bed, even if it is just a couple inches that goes on top--it is so comfortable--I don't know why I waited this long to get it. It would probably help couples because it conforms to your body and you don't notice so much when someone else lays down. So if you can fork out $100-200 (probably much more if you get it much thicker), it could be well worth it--I noticed I am sleeping much better.

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Pancolitis '04

Yet to go into remission, Flare-up since Aug 12th and still atempting to work in the midst of it

On Lialda (2/dy), probiotics, Oriental Medical Tea & Prescribed Diet, Greens+, Fish Oil

I find between 2am to an hour after I get out of bed, and between 10pm and midnight are the worst for me. I have only JUST been able to start sleeping on my front and sides again and it has been wonderful. I have found constantly having to lie on my back left me with a sore spine during the day.

Hi Quincy,

I am doing much better, now going 2 to 5 times a day in the past week (just 2 times a day in the past few days) and as of last week have not been getting up in the middle of the night to have a bm. I haven't had any blood in almost two weeks and my bm's are almost fully formed. The past few days have been good, but I am not out of the woods yet, still deciding on the best course of treatments..

the popsicle's are Edy's (all natural) and I'll double check the ingredients to make sure (who knows what their 'all natural' really means!). I have cut out a lot of prepared foods, artificial sweetners, soda and caffeine since my big flare started and not sure how much that has all helped but believe it's healthier anyway.

How are you doing?

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Beth, 32

UC Diagnosed March 2000 (30 cenitmeters)

Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.

Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007

Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.