Post Colitis.

I received this ungodly condition from the powers that be in may of my 18th year. After I went into remission I had a few flares until I got pancreatitis from Asacol, from then on in was a downward spiral into the depths of colitic hell. Unfortunately even being on 100mg of Pred three times a day it couldn't stop the wave of destruction inside my body.

What a wonderful post, and how wonderful for you, Matt, that you have gotten your life back and are living it to the fullest!

Mitz

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Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

Matt i got an ileostomy April 17th of this year, and i love it! i think it's great for people to post postive stories about the surgery, because so many with UC are probably contemplating if surgery is right for them, and i knwo that reading positive stories helped me with my decision and helped me get through it.

matt - do you have a permanent bag or did you have a j-pouch constructed?

Good to know... Thanks Bro...

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Male 36yrs old. Indeterminate Colitis 6 yrs.


Lialda 2 a day

Protonix
multi vitamin

Matt,

Congratulations on your new and improved health! I'm right there with you having opted for j-pouch surgery 7 years ago. There's not a thing I miss about having UC!

Sue

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dx proctitis in 1987

Matt, my surgery date is November 14th (proctocolectomy w/perm ileostomy) & I can't wait to get it over & done with & be on the other side of this whole UC nightmare. I love reading posts like yours- the ostomy forum is awesome also! I am looking forward to the whole surgical process... really!!!! hard to believe, but I am.

Matt - good to see another new member! Welcome to HealingWell!

You have a way with words! Are you a write by chance? You definitely could be :)

Glad to hear your doing well post colitis. It must have been like having a HUGE weight lifted off of your shoulders to get rid of the medications and limitations of UC. Three chers for you!

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Pan-colitis and GERD diagnosed May 2003

 

Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed

Aciphex, Effexor XR, BCP, Rhinocort nasal spray

Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12

 

Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.

 

Co-Mod for the UC forum

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KSU It's a temporary bag at the moment. I could have a reversal ie: the J-pouch procedure. But my doctor recommends I get on with my life.

Son has uc. Seven years young. Hard road. Losing hair and curly from imuran I believe. Does anyone know if this thing settles down or is even reversible over time. Aside from all the difficulties he hates this hair thing. I wish I could at least help him feel better in this area. Prednisone has already done so much damage with his young beautiful appearance. Looking for some answers. Thanks. His loving mom.