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Post Colitis.  
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Posted 10/11/2007 3:19 PM (GMT -7)
I received this ungodly condition from the powers that be in may of my 18th year. After I went into remission I had a few flares until I got pancreatitis from Asacol, from then on in was a downward spiral into the depths of colitic hell. Unfortunately even being on 100mg of Pred three times a day it couldn't stop the wave of destruction inside my body.
 
On the 20th of december last year I under went the dreaded surgery, and as it comes around to the anniversary of this event I can now look back with regret, remorse but most importantly hope.
 
I now eat anything I want with absolutely no consequences, can drink as much as I want and get soused on the weekend once more with my friends, and absolutely unequivicaly lead a normal life, apart from the Illeostomy, which I will say is an improvement. No more pain no more suffering no more spending my life in the darn bathroom. No more medication to turn me into a ghastly apparition of my once former and strong defiant self.
 
If anyone is considering having the operation I can indeed tell you with the upmost certainty and conviction that life after Colitis is good it's very bloody good indeed. There is always light at the end of the tunnel, the metaphorical tunnel in this instance for me was the dreaded operation and now I am living my life again.
"I Guess it comes down to a simple choice really, get busy living or get busy dying" - That's God darn right.

Posted 10/11/2007 5:08 PM (GMT -7)
What a wonderful post, and how wonderful for you, Matt, that you have gotten your life back and are living it to the fullest!

Mitz
Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

Posted 10/11/2007 6:52 PM (GMT -7)
Matt i got an ileostomy April 17th of this year, and i love it! i think it's great for people to post postive stories about the surgery, because so many with UC are probably contemplating if surgery is right for them, and i knwo that reading positive stories helped me with my decision and helped me get through it.
Posted 10/12/2007 2:51 AM (GMT -7)
matt - do you have a permanent bag or did you have a j-pouch constructed?
 
thanks
Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg
 

Posted 10/12/2007 6:03 AM (GMT -7)
Good to know... Thanks Bro...
Male 36yrs old. Indeterminate Colitis 6 yrs.


Lialda 2 a day

Protonix
multi vitamin

Posted 10/12/2007 6:45 AM (GMT -7)
Matt,

Congratulations on your new and improved health! I'm right there with you having opted for j-pouch surgery 7 years ago. There's not a thing I miss about having UC!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

Posted 10/12/2007 6:52 AM (GMT -7)
Matt, my surgery date is November 14th (proctocolectomy w/perm ileostomy) & I can't wait to get it over & done with & be on the other side of this whole UC nightmare. I love reading posts like yours- the ostomy forum is awesome also! I am looking forward to the whole surgical process... really!!!! hard to believe, but I am.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 60mgs/day
nothing works anymore.....
surgery date- November 14th!!!!!!

Posted 10/12/2007 11:10 AM (GMT -7)
Matt - good to see another new member! Welcome to HealingWell!

You have a way with words! Are you a write by chance? You definitely could be :)

Glad to hear your doing well post colitis. It must have been like having a HUGE weight lifted off of your shoulders to get rid of the medications and limitations of UC. Three chers for you!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 10/12/2007 1:56 PM (GMT -7)
KSU It's a temporary bag at the moment. I could have a reversal ie: the J-pouch procedure. But my doctor recommends I get on with my life.
 
I have Just started an English and History degree course at the University of Lincoln.
"I Guess it comes down to a simple choice really, get busy living or get busy dying" - That's God darn right.

Posted 10/19/2007 6:04 PM (GMT -7)
Son has uc. Seven years young. Hard road. Losing hair and curly from imuran I believe. Does anyone know if this thing settles down or is even reversible over time. Aside from all the difficulties he hates this hair thing. I wish I could at least help him feel better in this area. Prednisone has already done so much damage with his young beautiful appearance. Looking for some answers. Thanks. His loving mom.
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