Saw your post. I posted this below under topic--Sex, what's that?:
Posted 9/22/2007 12:58 PM (GMT -6)
Yeah, just don't feel like it anymore--too much fatigue, too tired, face it, diarrhea is not sexy--lol. I am totally o.k. w/not feeling sexual right now, but I'm concerned b/c I have a long term partner, who is very sympathetic to my situation, but still, I feel bad. This is NOT a medication thing, or a libido thing, it's a dealing with chronic illness thing. Can you relate? Oh, yeah, we are very affectionate, kissy, kissy, hugs, etc., And, yes, we've talked about it, but still my partner's very healthy, fit and "normal" physically--you know what I mean.
Not many responses. Mostly people telling me I will get back my sex drive when I'm in remission; not sure people got what I was trying to say, I'm coming from a chronic illness thing. I've had UC over 10 years (IBS longer) and remission? Yah, I have periods of less activity, but pretty much every day is a challenge with one thing or another. I also don't always want to be the "sick" partner, I don't think it's fair and I don't want our relationship to revolve around my illnesses--so I do my best to keep my spirits up, or not talk/focus on it all the time and that in itself is work too.
I would love to have a support group in my community too (I've looked, nothing), the internet is great and all, but their's nothing like live feedback, seeing empathy in another person's eyes/face/body language.
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).