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Posted 10/11/2007 7:35 PM (GMT -7)
this may seem really weird to ask...  but what are you bm's like really?

i say that i go like 13+ times a day and that it is bloody diarrhea, but its not really.

there is a lot of blood in the toilet, it is liquidy, and then there are little bloody bits of i dont know what.

it doesnt seem like poo.  there isnt very much of it (from all the pain involved, you think there would be a massive explosion)

its not normal diarrhea like when your sick with the flu or gastro.

its still smellly, but it just isnt your everyday average diarrhea bomb.

its very weird. 

it hurts my entire left side so bad that i vomit while on the toilet and it feels like there is truck trying to get thru. but nothing really comes out but bits of bloody nothing. i dont get it?

do you know what i mean or am i just a freak of nature?

Posted 10/12/2007 12:32 AM (GMT -7)
Ahhhhh...those white-knuckler bms..I remember them well!!!

You're flaring.

Your colon is raw, raw, raw...and anything at all that's in there..be it mucus, blood, stool, bile...anything...will be pushed along and away to be expelled at a high rate. The colon ends up in like a spasming mode and doesn't have the normal peristalsis contractions, etc anymore. it's a survival mechanism for the colon.

The fact that UC starts at the rectum and will be inflamed there regardless, think of it this way.....the rectum has lots of contractions and should be a slippery smooth area for whatever is in the colon to be expelled. A rectum in an advanced state of inflammation + having that many bms will try really, really hard to get anything and everything out fast asap...no matter what. So, add the extra contractions, spasms to a rectum that's raw (that's like having the outer layer of your skin peeled off after having scalding water poured over it) with anything passing through/over it..the pain will be horrific.

So, here comes the question....Are you not on any meds?

How long have you been in this state?

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/12/2007 1:23 AM (GMT -7)
okay... i have been in this state since feb 2007. it went away for 2 weeks just a week ago. got better after the antibiotic combo therapy. and on sunday the pain was back in a bad way.

i was on mesalazine 3 twice a day.
i stopped those
i am now on prednisolone 37.5 mg a day
going to start on imuran next week

----
i have been on budesonide, vsl#3, aloe elite, sulfasalisate, prednisone, and various other things and nothing worked....

so that leaves me where i am now. severe left side colitis to the splenic flexure. and mild throughout the rest of it.
Posted 10/12/2007 4:16 AM (GMT -7)
I don't see you've been on any rectal meds? Or have you? No you're not a freak of nature! I've been there too with the horrific "white knucklers" as Q would say. And with massive amounts of blood and chunks (boy that sounds scary huh??).

 @--->--SHERRY--<---@

Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia

Secondary Reynauds Syndrome - '04 - Norvasc

Fibromyalgia - '06 

PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE

@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@

Posted 10/12/2007 6:49 AM (GMT -7)
unfortunately, I can relate.....I wonder if those bit's and pieces are part of my colon, which scares me. I also get really nauseaus too when having a bad bm.
Beth, 32

UC Diagnosed March 2000

Hydrocortisone enemas 1xday

Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.

Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007

Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 10/12/2007 11:45 AM (GMT -7)
I always thought those red pieces were bits of tissue from the ulcers in my colon.

Gosh I hope to never experience those white knucklers again. The agony!!!!!!!

Gastro bleeding has a WHOLE different smell - yucky :(

What about Rowasa or Hydrocort?
Pan-colitis and GERD diagnosed May 2003

Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed

Aciphex, Effexor XR, BCP, Rhinocort nasal spray

Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12

 

Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.

Co-Mod for the UC forum

Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 10/12/2007 12:04 PM (GMT -7)
Definitely call your doctor and discuss rectal meds. You're also on pred and tapering?

kazygirl..Is your UC throughout or limited?

Are you averse to the thought of using rectal meds?

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/14/2007 11:31 PM (GMT -7)
im being checked into a hospital in like an hour. colitis is so severe on left side that they are going to pump me up full of high dose IV steroids. fun for me. will be in there for a few days. pain meds too.
i havent gotten out of bed for 3 days. cant move and the pain is absolutely atrocioius.

i guess ill let you know how i go in a few days when im outta the hospital.

ive never been checked into a hospital before for anything. im a bit freaked out at the moment.
yikes.
Posted 10/15/2007 12:13 AM (GMT -7)
Wow...didn't realise! Hope things get under control quickly. Let us know how you are when you get back home.

q

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/15/2007 6:58 AM (GMT -7)
Oh wow! I hope the hospital works out for you. The IV steroids should give you some relief! You are in my thoughts...good luck! Feel Better
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07
Prontonix once daily for acid reflux, zofran twice daily for nausea

Posted 10/15/2007 7:46 AM (GMT -7)

I hope all goes well!  I was hospitalized for the first time for four days last week. The IV steroids worked wonders and I am so much better now.  No blood for about 8-9 days now!

Let us know how it goes.

Kris2336

 

 

 

Posted 10/15/2007 7:09 PM (GMT -7)
We're hoping for the best for you! Please let us know how you are when you get out!
Pan-colitis and GERD diagnosed May 2003

Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed

Aciphex, Effexor XR, BCP, Rhinocort nasal spray

Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12

 

Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.

Co-Mod for the UC forum

Keep HealingWell running smoothly:  www.healingwell.com/donate

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