HOW CAN I HELP SOMEONE WITH COLITIS?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

WILDRABIKAH
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/12/2007 7:19 AM (GMT -7)   
My pregnant sister just informed me (she's on baby #5) that she has Colitis and posibly Anemic too... We are 2,000 miles apart - what can I do (maybe care package items) to help??? 
 
15. Do not post offline personal contact information (ie. your home address, phone numbers etc.) and do not ask for personal information from others.  Modify your member profile in the Control Panel (VIEW IMAGE) at the top left corner of the forum to set privacy settings for your account.  Use of full names (your first and last name) is allowed but strongly discouraged.  This is to protect your security and identity.

Post Edited By Moderator (Loneylane) : 10/12/2007 8:45:41 AM (GMT-6)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 10/12/2007 7:46 AM (GMT -7)   
Welcome Wildrabikah, and welcome to Healingwell. I had to edit your post because we ask our members not to post personal information for your own protection. I'm so sorry to hear that your sister has been diagnosed with Colitis...is it Ulcerative Colitis? There are several types of Colitis, and Ulcerative Colitis happens to be one of them. Is she bleeding at all? I think the best thing you can do is offer support; you've already found an awesome site to gather some info. Also try the Chrohns and Colitis website, they offer a lot of good info too. Take care, and hope this helps.
Carol

Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 10/12/2007 8:41 AM (GMT -7)   
Hi and welcome to Healingwell :) It's nice of you to want to send some sort of care package to your sister. But I think just her knowing that you will be there for her is going to be enough. Maybe not in person but a phone call away. You need to find out what type of colitis she has (though all of them are not fun), but if it's not Ulcerative Colitis but another form, then maybe with the proper treatment it will go away one day. Unlike UC which will never go away on it's own. Does your sister have a computer? If so, have her come visit us anytime and have her visit www.ccfa.org


 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


WILDRABIKAH
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/12/2007 9:41 AM (GMT -7)   
eyes  Ooops!  Thanks Moderator (Loneylane)

WILDRABIKAH
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/12/2007 9:43 AM (GMT -7)   
Are there any foods or snacks that are "easy" to eat/go down with Little to No irritation or symptoms?
 
I'm not sure which type yet... this is still new...

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/12/2007 11:12 AM (GMT -7)   
Well although some believe food/diet has nothing to do with IBD, there's enough research showing that refined sugar causes bacterial over-growth which exacerbates IBD symptoms...

If someone was offering to send me a care package this is what I'd want (afterall, you are looking for ideas here);

I'd want a good probiotic (the one I use is called primadophilus reuteri made by natures way, it has to be kept cold so unless you could ensure it would be sent cold packed, I'd at least give the name of this probiotic and urge her to try it...it's completely safe (and necessary to take) even while pregnant.

I'd also want Stevia to use as a sugar substitue, a small amount and I mean the tip of a tsp into a cup of tea or something goes a very long way, it's a natural sweetner, very safe compared to refined sugar.

A good "bathroom" book, something funny and uplifting as it gets fairly depressing sitting on the pot all day and night.

A box of chamomile tea (selestial seasonings makes a good one, the taste is not too strong as chamomile can taste pretty gross) this is a natural anti-inflammatory, just make sure she's not allergic to ragweed or she won't do well with chamomile.

A gift certificate from her favorite store so she can buy herself something she'd really like.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/12/2007 11:27 AM (GMT -7)   
Soft TP!

Since she has other babies, she'll probably have diaper rash cream - it's a godsend :)

Someone to listen - about a good day, about a bad day.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


WILDRABIKAH
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/12/2007 12:29 PM (GMT -7)   
PB4 & DAKOTA - THANKS! I can now make her a little pamper basket w/ a good book and the gift card... I will def look into the probiotic - Thank U! God Bless U All!

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/12/2007 2:54 PM (GMT -7)   
One of the best things you could do if you have the money, IMHO, is spring for a cleaning service to come in every other week or so to help keep household chores under control. This was a huge burden off my mind when I was really ill.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


Rot Gut
Regular Member


Date Joined Jun 2006
Total Posts : 63
   Posted 10/13/2007 2:39 AM (GMT -7)   
ROCK ON PRINCESA!

I second the house cleaning service. Best thing hubby ever did for me was to hire the "House Fairies" to work their magic.
Rot Gut

Left Side UC diagnosed in 1988 while pregnant with twins
Taking PREDNISONE for the first time! Almost done tapering.
Colazal
Canasa
Aciphex
Rowasa
Whining


okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 10/13/2007 1:53 PM (GMT -7)   
I also think that maybe like a card that just says thinking of you, and maybe like the others said about the house cleaning.

I know that after our last son was born, my body had a terrible attack. The hubby and kids were on their own as to eating etc. I would be hungry, but then you know what happens if you eat......... and I know that you have to eat..


My sister has tried to read about as much as she can about UC - the rest of my family just dont get how it is so different for everyone that has it.
Diagonsed with UC in about 99 - 
Started new GI 9-25-07
Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 10/14/2007 9:32 AM (GMT -7)   
You might want that gift certificate to be to a store that sells lacy, sexy things. I remember being first diagnosed and in the bathroom 20 times a day. I felt dirty and ugly, and never thought I'd feel sexy again. I can only imagine that being pregnant at the same time may really increase those feelings. My wonderful husband told me that I was still desirable and surprised me with a beautiful negligee and a romantic weekend at a luxury hotel. It gave me hope that some day I would feel like an attractive person again.

Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/14/2007 1:57 PM (GMT -7)   
That reminds me: when I was first diagnosed and was so ill, a friend of mine from church gave me a little makeover at the exclusive shop where she works. That was another gift that could help someone feel more attractive and be a boost to their spirits.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


WILDRABIKAH
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/15/2007 4:34 AM (GMT -7)   
AWESOME! So she needs a shopping card, maid service, spa gift card, a funny book, and the probitic! I also through in a ticket/visit from me :)

I wish you all the best! Thanks for the great ideas and 'clueing' me into everything... She seems happier when I ask questions rather then her trying to sift through the info worried about what she can or can't tell people because she doesn't know their limits on TMI - with me, I told her nothing is TMI (too much info) and she needs to lean on me and not be afraid to do so.

I have diabetes and she's always been there for me... I'm sorry that anyone has to go through UC... Bless U All!

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 10/15/2007 4:59 AM (GMT -7)   
Boy I wish I had as thoughtful siblings as you! Do you mind giving my brothers classes on compassion?? :) Your sister is very lucky to have you and I find it really sweet that you are going all out for her.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/15/2007 7:51 AM (GMT -7)   
for me, just having people to talk to and really listen and care and call me/email me to see how I am doing means the world to me.

Also, i'm with Princesa, we are going to have a cleaning service come in....it's just too much for me and my husband he works 6 days a week, has school 2 nights a week, plus does side jobs 1 or two nights a week and he just can't do it all and I am too tired to really do much (he installs fire sprinklers & HVAC) so he has a tiring job and still does the dishes, cooks (we both do) and clean but don't know how we manage to mess the house up??? Mostly we need someone to come in and clean the floors and dust (we have mostly wood floors and I hate them, they look nice but such a PIA to clean, hate sweeping & mopping)
Beth, 32
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/15/2007 7:14 PM (GMT -7)   
Oh the cleaning service is a WONDERFUL idea! What a relief that would have been for me :)

I'm sure that avisit from you would do wonders as well. It was always great when someone was able to take my mind of things - it was a way for me to feel better for a while. Make sure she knows that she's not to prep for your visit in ANY way. She's to let you take care of her!!

You are a wonderful sibling!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 10/15/2007 7:29 PM (GMT -7)   
I think the best gift you can give her is to educate yourself and family on what UC is and how it makes a person feel. I have a very understanding family who have learned as much as they can so they know best how to support me.
Your sister is very lucky to have you in her life, you sound very supportive!
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 11:12 PM (GMT -7)
There are a total of 2,906,365 posts in 318,948 threads.
View Active Threads


Who's Online
This forum has 158284 registered members. Please welcome our newest member, Mindy829.
219 Guest(s), 4 Registered Member(s) are currently online.  Details
DBwithUC, MDNative, Lapis_29, Pratoman