My dad is having the exact same problem with protein from his kidneys leaking (he doesn't have IBD) and he was swelling all over! Feet, hands then his belly. No they have him on a anti cancer drug and he doesn't have a cancer! It seems to helping though, a little.
Old Hat, you've been there for me so many time, I wish I could offer some help. All those meds cause some kind of side effects, be it long term or short for me. I just couldn't do the pain, diarreah, blood the same symptoms I had when I was not taking any meds, so it didn't help me. Thanks for answering all my questions when I was on it. One day at a time for me, when I have a rouch potty, trust me I feel like I want to reach for asacol, then one day I might be ok. No one deserves to be in this hellish state of living.