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jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 10/14/2007 9:43 AM (GMT -7)   
If any of you still remember me, you'll recall that I don't stop in here often when I'm doing well. Today is my most recent tour, and I'm happy to see that you're all still here helping one another. This community was a godsend when I was so terribly sick. Thanks again, and keep up the good work!
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 10/14/2007 10:33 AM (GMT -7)   
Wow Judy..happy to hear you're doing well and that you're back on the boards posting. Your experience is invaluable to other members, especially since you've had quite a go of it for a while.

Be well...
quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 10/14/2007 10:41 AM (GMT -7)   
Hey Judy, glad to hear you are doing so well! Glad you stopped in to say hi, and let us know how you are doing! Good news. :-)
Carol

Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 10/14/2007 2:28 PM (GMT -7)   
It's encouraging to hear from people who are feeling well! Remission for 2 years? That's something to really be excited about. The most I've gotten has been about 10 months straight (out of the last 10 years). Perhaps you can share some stories from the land of remission? How long did it take for the remicade to work?

Best wishes to you.


----
UC for 10 years
Meds: 6MP
Past meds: you name it, I've tried it

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 10/14/2007 2:51 PM (GMT -7)   

I was in a bad flare from before my diagnosis until two years ago, was steroid-dependent to even keep things under enough control to be able to function. After about the third treatment with Remicade I started seeing improvement, and now I live a normal life and eat what I want, in moderation. For me, it took the combination of Colazal, Imuran and Remicade. If I drop any one, I flare again.

I truly believe there is or will be a treatment out there that will help each of us to feel normal again. Sometimes it's just a matter of holding on until your treatment is developed or discovered.


Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 10/14/2007 3:18 PM (GMT -7)   
"I truly believe there is or will be a treatment out there that will help each of us to feel normal again. Sometimes it's just a matter of holding on until your treatment is developed or discovered."

Thanks. That's the best thing I've read all day.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 10/14/2007 5:18 PM (GMT -7)   
Wow remission for 2 years, that is great news!
 
 
Dx:  2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 

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