Tapering and Pred

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New Member

Date Joined Jun 2007
Total Posts : 17
   Posted 10/14/2007 12:44 PM (GMT -6)   
I'm tapering off my pred and I was wondering if anyone had more problems with the side effects while they were tapering?  I was on 20 and I'm down to 15mg now.  I seem to be having more mood swings and the acne is getting a little worse in certain areas, is this normal while tapering?  Thanks!
3 400mg Asacol X 4
40mg Prednisone(Doc moved me up again)
20mg Bentyl(when needed)
20mg Lexapro

Regular Member

Date Joined Sep 2007
Total Posts : 113
   Posted 10/14/2007 2:35 PM (GMT -6)   
I've found the worst side effects for me occur as I'm tapering down the last few levels of prednisone. It actually takes about 3 weeks after I've stopped completely for the aggression, acne, "round face" to go away.
Diagnosed Fall of 2004

6MP 1/2tab x 2 25mg ("re-challenging" 6mp)
Remicade 4 infusions
Prednisone 25mg (down to 5mg taper a week)
Citrucil 6-8 capsules a day

Regular Member

Date Joined May 2006
Total Posts : 260
   Posted 10/14/2007 3:43 PM (GMT -6)   
My main side effect from tapering is the significant loss of energy.  Once I'm down to 10mg is when it hits me.  Other than that I'm one of the lucky ones not to get the terrible side effect of moon face or weight gain.  I get acne/insomnia/joint pain/mood swings.

---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC
Currently in mild/moderate flare
2 400mg Asacol 4X day
20 mg Prednisone
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines

Regular Member

Date Joined Oct 2007
Total Posts : 486
   Posted 10/14/2007 4:07 PM (GMT -6)   
Whenever I've tapered off Prednisone, I find that my symptoms start coming back when I get down to about 15 or 10 mg. (Usually starting at 40 mg.) Prednisone is actually a mood elevator for me but I start to lose that happy side effect after about 20 mg!

Maybe you can try to ease the side effects of tapering slower? I've tried alternating -- one day at 20 mg, the next at 15 mg. Or you could try going down 2.5 mg instead of 5.

Maybe that would help? But yes, I think the side effects are pretty normal.

Regular Member

Date Joined Feb 2007
Total Posts : 436
   Posted 10/15/2007 11:10 AM (GMT -6)   
I have completely come off prednisone recently. My mood seems to be improving and my acne that was on my shoulder area and face is almost completely gone away. And my joint pain is finally gone. while i was tapering my spine really hurt and my right knee and ankle swelled up a little for no reason. my torso was so tight i couldn't even fully sneeze, but I can now that i'm completely off.
My UC symtoms are coming back. mucus in the morning with some blood. :( But I think I know why. It may be from being off prednisone, but i really think it is mainly b/c i have been eating lots of sweets and my roommates cereal and milk. not a good Idea when you think diet relates to your UC. I am going to try SCD diet again, but after my Cousin gets back from Iraq next week, b/c were having a thanksgiving/homecoming dinner for him on saturday.mmmm.
Severe Colitis (pancolitis) since January 9, 2005
currently:  I must say Under Control
RX/day:  5mg prednisone; 2400mg Asacol; 150 Azathioprine
OTC: Probioplus DDS; seldom use vitamins & other natural treatments
FYI: 3 weeks of SCD diet and caprylic acid put and end to my 3rd and worst flare ever. (But i'm not in SCD anymore)

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