is still not in remission. She has been on 60 mg of prednisone for a week along with her asacol. She is also taking nightly hydrocortisone enemas. She feels better than she did but still spends the first several hours back and forth in the bathroom. She has gone to school for 3 hours last Wednesday. I wake her up at 5 am to get her to school sometime during the day but school ends by 2 pm so timing sucks.
The doctor had mentioned that 6-mp would probably be the next step. I know it takes time for it to kick in so she would have to take something along with it. He mentioned endocort (entocort, not sure which).
My question is how long do we wait to see a change before her going on 6-mp? Honestly we can't remember last year when she was sick how long it took for her to finally start to get back to school. What side effects will she get with 6-mp? What else can anyone tell us about changing meds?
Part of the problem is admitting that the asacol and rowasa alone may not be working anymore. We think this flare started when she lowered her rowasa just a bit too much this past summer. Thought we might have caught it quick enough but it doesn't seem to be the case.
Thanks for your input.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday
hydrocortisone enema nightly, rowasa in the morning
40 mg prednisone daily
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly!
Summer 2007 - slowly began tapering Rowasa
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone