UC/Remicade/MS

I have a question for all of you who use Remicade.  I have had about 6 treatments of Remicade and about a month ago my hands and feet started to feel numb (pins and needles). 

My doctor said that some people who take Remicade could develop neurological symtoms for certain diseases, MS being one of them.  I have since read up on this disturbing news and have found out that you don't necessarily have to be on Remicade, you just have to have an IBD disease to be more prone to these conditions.  That is, if you have one chronic inflammatory disease, you're more likely than the general population to develop another.   

Needless to say, I'm a wreck.  I have an appointment next week with a neurologist, but was wondering if anyone has any knowledge or experience with this matter. 

Thanks everyone.

Gracie 

Thanks Dakotagirl, I'll try and take your advice. It's not easy though.

i believe remicade has, in rare cases, been associated with demyelinating disease, such as MS.

Also, MS and IBD are unfortunately correlated (having one means you have a higher chance of another). MS is likely a pathogen+genetic weakness, as with IBD. Could there be a common trigger?

As for whether you should worry-- the first symptom of MS onset is usually optic neuritis, not pins and needles. You could have a simple vitamin B deficiency.

Thanks everyone for the info. What a mess. Bunny, I hope things work out for you. I read your post and it sounds like you're going through some rough times. Sometimes I'm ready to throw in the towel and just have my colon removed. At least I wouldn't have to take those terrible medications that seem to do awful things to the body.

Take care,
Gracie