Keith (KS1905) -- how are you doing?

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5212

Posted 10/15/2007 5:26 PM (GMT -7)

Assuming your insurer agreed you could go into Mt. Sinai Hospital for IV Cyclosporine, hope you're feeling better & can report back to us soon. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

kb5

Veteran Member

Joined : Jan 2007

Posts : 1015

Posted 10/16/2007 2:29 PM (GMT -7)

bump

Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07
Prontonix once daily for acid reflux, zofran twice daily for nausea

dakotagirl

Veteran Member

Joined : Apr 2006

Posts : 3402

Posted 10/17/2007 6:45 AM (GMT -7)

bump

Pan-colitis and GERD diagnosed May 2003

Asacol 12 per day, Azathioprine 75mg, Rowasa and Canasa as needed

Aciphex, Effexor XR, BCP, Rhinocort nasal spray

Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12

Osteopenia (hip and spine) from prednisone use. Started Azathioprine because I was steroid dependent.

Co-Mod for the UC forum

Keep HealingWell running smoothly: www.healingwell.com/donate

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5212

Posted 10/17/2007 3:45 PM (GMT -7)

bump

Lonie

Veteran Member

Joined : Feb 2005

Posts : 6448

Posted 10/18/2007 6:05 AM (GMT -7)

bump

Carol

Remicade - will have my 19th infusion on November 1.

Imuran - 100 mgs....taken before bedtime

Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"

Co-Moderator for the UC Forum

ks1905

Veteran Member

Joined : Sep 2005

Posts : 5348

Posted 10/18/2007 5:26 PM (GMT -7)

Thanks everyone for thinking of me.

I just got back from the hospital this afternoon, I was at Mount Sinai for 12 days on IV Cyclosporine.

I am exhausted I will write more either this weekend or early next week. I need to catch up on my life, work and most importantly my rest but promise to write more next week; it was a very interesting hospital stay.

I am going to bed right now.

--Keith

DX'd with Pan-Colitis June 2005

Current Status: Flaring since May

Current Meds: 6-mp & Colocort

Supplements: None

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 10/18/2007 5:28 PM (GMT -7)

Hey Keith. I was starting to get worried! Hope you are feeling better. When you are up to it let us know how you are doing.

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

https://www.healingwell.com/donate
Co-Moderator UC Forum

ks1905

Veteran Member

Joined : Sep 2005

Posts : 5348

Posted 10/18/2007 5:35 PM (GMT -7)

p.s. I am basically in remission as of yesterday. I even drank a large ice coffee and ate 2 large fruit cups just to test out my colon.... I am happy to report that my colon passed the test without incident.

--Keith

DX'd with Pan-Colitis June 2005

Current Status: Flaring since May

Current Meds: 6-mp & Colocort

Supplements: None

Red_34

Forum Moderator

Joined : Apr 2004

Posts : 23575

Posted 10/18/2007 5:37 PM (GMT -7)

Awesome news Keith! Let us know more when you can.

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia}

^{Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE}

^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@}

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quincy

Elite Member

Joined : May 2003

Posts : 31381

Posted 10/18/2007 9:01 PM (GMT -7)

Keith..happy to hear your colon passed your test..lol!

Hope you continue to be well.
q

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Bennie

Veteran Member

Joined : Nov 2006

Posts : 552

Posted 10/18/2007 9:28 PM (GMT -7)

Glad you are doing well, Keith! Get some rest. Can't wait to hear about your escapades.

--Mom of bratcat (16 years old)--

bratcat was diagnosed with pancolitis October 2006

Current meds:

Asacol - 4 pills/3Xday

hydrocortisone enema nightly, rowasa in the morning

40 mg prednisone daily

11/14/06 - started prednisone; 1/28/07 - finished prednisone!

3/3/07 - began to taper off hydrocortisone sloowwly!

Summer 2007 - slowly began tapering Rowasa

9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone

Eva Lou

Veteran Member

Joined : Sep 2006

Posts : 3444

Posted 10/19/2007 6:36 AM (GMT -7)

hey, good deal, Keith! I'm glad the cyclosporine worked. So what's next, are you still planning for surgery? I had a double dose of Remicade this past Monday to ttry to stabilize me a bit, & started bleeding again Wednesday pm.... so frustrating! I'm just trying to bide my time comfortably 'til my surgery, November 14th. At this point I am SO looking forward to it!

diagnosed with UC '02

meds-

Asacol- 8 tabs/day

Remicade infusions

Imuran- 100mgs/day

Prednisone- 60mgs/day

nothing works anymore.....

surgery date- November 14th!!!!!!

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5212

Posted 10/19/2007 9:26 AM (GMT -7)

Way to go, Keith! Hope the hospital staff did not wake you at 5:30 AM to wash your face!!!! (?) / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

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Keith (KS1905) -- how are you doing?

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