Keith (KS1905) -- how are you doing?

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Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 10/15/2007 5:26 PM (GMT -7)   
Assuming your insurer agreed you could go into Mt. Sinai Hospital for IV Cyclosporine, hope you're feeling better & can report back to us soon. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 10/16/2007 2:29 PM (GMT -7)   
bump
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/17/2007 6:45 AM (GMT -7)   
bump
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 10/17/2007 3:45 PM (GMT -7)   

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 10/18/2007 6:05 AM (GMT -7)   

bump

 


Carol

Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 10/18/2007 5:26 PM (GMT -7)   
Thanks everyone for thinking of me.

I just got back from the hospital this afternoon, I was at Mount Sinai for 12 days on IV Cyclosporine.

I am exhausted I will write more either this weekend or early next week. I need to catch up on my life, work and most importantly my rest but promise to write more next week; it was a very interesting hospital stay.

I am going to bed right now.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  6-mp & Colocort
Supplements:  None 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 10/18/2007 5:28 PM (GMT -7)   
Hey Keith. I was starting to get worried! Hope you are feeling better. When you are up to it let us know how you are doing.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4809
   Posted 10/18/2007 5:35 PM (GMT -7)   
p.s. I am basically in remission as of yesterday. I even drank a large ice coffee and ate 2 large fruit cups just to test out my colon.... I am happy to report that my colon passed the test without incident.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  6-mp & Colocort
Supplements:  None 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 10/18/2007 5:37 PM (GMT -7)   
Awesome news Keith! Let us know more when you can.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 10/18/2007 9:01 PM (GMT -7)   
Keith..happy to hear your colon passed your test..lol!

Hope you continue to be well.
q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 10/18/2007 9:28 PM (GMT -7)   
Glad you are doing well, Keith! Get some rest. Can't wait to hear about your escapades.

--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
hydrocortisone enema nightly, rowasa in the morning
40 mg prednisone daily
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly!
Summer 2007 - slowly began tapering Rowasa
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 10/19/2007 6:36 AM (GMT -7)   
hey, good deal, Keith! I'm glad the cyclosporine worked. So what's next, are you still planning for surgery? I had a double dose of  Remicade this past Monday to ttry to stabilize me a bit, & started bleeding again Wednesday pm.... so frustrating! I'm just trying to bide my time comfortably 'til my surgery, November 14th. At this point I am SO looking forward to it!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 60mgs/day
nothing works anymore.....
surgery date- November 14th!!!!!!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 10/19/2007 9:26 AM (GMT -7)   
Way to go, Keith! Hope the hospital staff did not wake you at 5:30 AM to wash your face!!!! (?) / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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