doc said no to spouse during colonoscopy & biopsy in the neck

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okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 10/15/2007 8:32 PM (GMT -7)   
Okay,
so they told me no when I asked today about husband in the room during the scope.
 
I start the liquid diet tonight for colonoscopy on Wednesday.
 
They had found a lump in my left side of my neck.....
so they sent me to another doctor -  I forget the kind.
 
He did ultrasounds then did a biopsy with a needle.....
not once, or two times but FOUR times -  the last two with a big needle.  He said that he was going to give it a hard stab the last time,...  they did get some out and the test looked strange.....
so they are sending it for more testing.  They also took blood.
 
I dont know why but tonight I would just like to sit in a corner and cry.
DH is already asleep so is DD  only me and the 3 year old up ---   he never sleeps.......
 
I know I have a good life and my UC is doing good-  not seeing blood  still have D.  but dont know if that is due to the cold that I cant seem to shake.  
 
I okay so I am having my own pity party. nono
 
Oh and then my mom called on the way to have the dock look at my neck and said there was a program on CNN about Celiac Disease and how people are told that they have UC when it is that.....
 
I JUST WANT TO BE NORMAL.
 
Okay I am better.


Diagonsed with UC in about 99 - 
Started new GI 9-25-07
Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 

Post Edited (okiemom) : 10/15/2007 9:43:31 PM (GMT-6)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 10/15/2007 8:41 PM (GMT -7)   
I can totally relate. I have been having little pity parties for myself quite often lately, even though my UC symptoms aren't that bad right now. The whole disease is just so frustrating. And, yeah, I just want to be normal and not have to worry about all these health issues.

Good luck with your prep and c-scope.

Sorry to hear about the lump on your neck. It scares me when they get those huge needles out. Hopefully, the bipsy will turn out normal. Keep us posted.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; experimenting w/fiber supplements (Metamucil and Fiber Choice); Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/16/2007 7:08 AM (GMT -7)   
I'd just make sure your hubby is with you after the scope when the nurse and/or doctor talk to you. There have been times when I remember little of what was discussed. I was provided with a print out describing the condition of my colon and photos taken from various sections after my latest scope, so you may still get to see what's going on in there.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 10/16/2007 7:16 AM (GMT -7)   
Yes, my hubby will be there when I wake up and for the doctor to speak with.

My mom is coming over to keep the kids so he can have full attention on me.
Diagonsed with UC in about 99 - 
Started new GI 9-25-07
Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 10/16/2007 7:35 AM (GMT -7)   
Not surprised to hear that your hubby won't be permitted to attend the c-scope session. State medical regulations applying to out-patient procedures have been toughened in recent yrs; I heard from a family practice doctor in my urban neighborhood that they get pretty specific about the required conditions in which doctors have to perform the scopes.                                                                         If you had celiac disease it would likely have disabled you during childhood. Did you feel abdominal pain at night & grind your teeth? It happened to the child of someone I know who was diagnosed at age 5. She needed an emergency appendectomy at age 8, but did improve as she got older & made dietary adjustments, eliminating wheat gluten, etc.                                                                            Good luck with your prep, scope, & neck problem. It will be great to have all the needlework etc. behind you. / Old Hat (nearly 30 yrs with left-sided UC; currently tapering Colazal after July flare; remission near)

okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 10/16/2007 8:04 AM (GMT -7)   
Thanks, last night it was just all getting to me.........

I need to stop drinking so much now, or by the time it is for me to drink I am going to be floating. I am normally not a breakfast person but today I think I could eat anything in the house. LOL


I plan to call the doc about the neck biopsy around 1 - I figure they will be back from lunch by then, I am glad that it did not leave a bruise.
Diagonsed with UC in about 99 - 
Started new GI 9-25-07
Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/16/2007 11:49 AM (GMT -7)   
Old Hat said...
If you had celiac disease it would likely have disabled you during childhood.

Not necessarily. A lot of celiacs go undiagnosed for years and it's alot more common than people realize. And there are other, milder levels of gluten sensitivity that may not show up on any kind of test. Your best bet is to educate yourself and eliminate all sources of gluten for a few weeks and keep a food journal. Your body knows best.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 

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