has been flaring for almost a month. She was put on 40 mg prednisone almost 2 weeks ago. When the wasn't any great improvement, the doctor upped it to 60 mg about
a week ago. Wednesday when we checked in with him, he told her to stop taking her asacol and rowasa (he thinks maybe she is getting an adverse reaction to them now). He sent her for bloodwork to check for C.Diff and to see if she can metabolize 6-mp. She also has to give a stool sample to check for C.Diff. We should get the results next week. He also wants to schedule a colonoscopy in about
2 weeks to see how inflamed she is and to see whether or not it has progressed to Crohns. Because school starts so early (7:15) and ends early (2 pm), Bratcat
has only been to a few classes one day last week (in the past month). She goes to sleep each night planning to go to school the next day. Then she wakes up and had to wait for her digestive system to settle. Most days it doesn't really settle until after noon and by then she is down to the last 2 classes. Her teachers (and the school) have been great. They keep in touch and she is able to get some of the work by email or by me picking it up at school. If school went from 1 pm to midnight, she'd be there everyday. It's amazing to see the difference throughout the day how she feels. I never know how much I should "push" her to try to get to school (at any time of the day, not even for 1st period). Sometimes she will come with me during the day to pick up my work (I work from home) so she can get out and move. I know her illness is very real (I've seen and heard it!) but I also know sometimes it's hard to get back into the routine when you are not feeling 100%. Last week when she went to school late, her stomach still hurt but she wasn't having to go to the bathroom constantly.
We are worried about switching medicine. When it was working (or maybe it still is), Bratcat was very happy with the asacol and rowasa.
I really hate this darn disease! And I'm not even the one whose body has to deal with it. It sucks seeing your child hurting and not being able to do anything about it.
Thanks for listening. Bennie