Hi dakotagirl, thanks for asking. She is doing OK. She went to school for the last 1-1/2 hours on Friday and I am bringing her to school in a few minutes today so she will have a little more than 2 hours of class today. She was up and about with me this morning and we stopped home for her to eat some more and see if her stomach cooperated. So far, so good. I did wake her up a bit later today. Maybe that helps. Maybe it has something to do with the amount of sleep she gets.
I just scheduled her colonoscopy for next Tuesday (10/30). The doctor could have done it this Thursday but unfortunately Bratcat has an important meeting for Girl Scouts this Wednesday night and the prep would have interfered. And the meeting is one that really can't be missed.
I haven't called the doctor yet today because I am going to be in and out of the house and I hate to miss his call back.
I still don't know what we are going to do about her medicine. I really would rather not see her start Remicade just yet. I don't know if it's worth trying to restart the Asacol that was stopped last week. I guess if the labwork comes back ok she will start 6-mp but that still doesn't help right now. She can't stay on the high dosage of prednisone too much longer. Maybe it is finally starting to work.
Any suggestions would be appreciated. Your good thoughts are truly valuable.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday
hydrocortisone enema nightly, rowasa in the morning
40 mg prednisone daily
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly!
Summer 2007 - slowly began tapering Rowasa
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone