I was on Pred for almost a year, then switched to Entocort because it was supposed to have fewer of the bad side effects. I was taking Calcium and vitamin D from the start, because I knew about
the osteoporosis issue. In total, I was on steroids for about
five years because I got desparately sick every time I tapered off of them.
I broke both of the bones in my lower left leg, and still don't know when it happened. Because I have a lot of trouble with the joint pains sometimes associated with UC, I didn't go to the doctor right away, so ended up having to have surgery.
Now I've had two shoulder surgeries because the steroids caused an extremely painful avascular necrosis which was killing the boney tissue.
I don't know if I could do anything differently if I had it to do over again, because at that time none of the newer treatments were approved for UC. Now, I'd much rather take Remicade and take my chances on its side effects than to let steroids painfully destroy my bones.
Left-sided UC diagnosed 2001. Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years!
Now in remission for almost two years. Remicade has been my wonder drug.
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."