I am writing this for those of you our there who are afraid of Imuran/6-MP, just to throw out a word of encouragement. I started Imuran 4 months ago and like everyone else was TERRIFIED of it after reading the drug info. But in the last week or so the drug appears to have really started kicking in, and I am finally going through the day without thinking about UC, much less having awful UC symptoms. It hasn't been perfect in that it has taken 16 weeks to become effective, and I am still using enemas some right now, but it is definitely starting to work. I have no urgency, can eat what I want, feel fine, and lead a totally normal life. I am tapering off the enemas soon, so obviously I need to get through that before I sign the praises of Imuran too much, but I just wanted to say that it is a good drug and you shouldn't be too scared of it. I lost hair at first, but that was when I was on prednisone and imuran together. Now that I am just on imuran, I am actually not losing hair, and even my hair stylist - who knows all about my hair loss fear - just commented last week how thick and healthy my hair is. I use Nioxin, a hair system you can buy at salons that is pricey but seems to really work, so if you're worried about that, and if you can afford the system (I use the shampoo, conditioner and treatment), go for it. oh, and though my signature says I am on 150mg, I only increased my dose 2 weeks ago, so my improvement has come only from being on 100mgs. (i was scheduled to increase, and because at 3.5 months I still was struggling, we decided to stick with it)
So.... all this is to say that for those of you scared of Imuran, try to believe me that its (seemingly) worth it. Once you get over the emotional stress of educating yourself about the drug, and freaking yourself out about it, you will likely come to really be thankful for it, as I on. Anyway, on that happy note (which hopefully is encouraging to any of my fellow UC-ers who need to hear a good review of Imuran), have a good weekend.
Pancolitis dx 3/07
*150mg Imuran/day (steroid dependent)
Various vitamins, probiotics, fish oil.