Entocort (budenoside) for UC?

Has anyone here managed to try Entocort for their UC?  I guess in the US it is only approved for CD.  My UC is sometimes considered on the indeterminate side, and also, I have heard that it is used for UC in some other countries, so I'm interested in seeing if I could get off pred and more onto entocort until I can get off the poison altogether.

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Pancolitis dx'd 1986, full med-free remission 88-97

Flaring or simmering ever since

10 20 mg pred, 100 mg Imuran

Probiotics (mainly Primal Defense)

Turmeric/circumin, various vitamins/minerals,

Low-carb version of Specific Carb Diet

After trying to do without Colazal I went into a flare over a year ago.  I had to go back on Colazal and was prescribed Entocort in addition.  It stopped the bleeding and I have been on it ever since.  Just finished a colonoscopy Wed. and awaiting lab results.  I still have some bleeding at times and the UC still is active.  I'd hate to think what would happen if I tried to get off anything now. Lab results due early next week and I'm  apprehensive because of what they found last year. 

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Left-sided UC Diagnosed 2004

Iron Deficiency Anemia Diagnosed 2007

Indeterminate Dysplasia Biopsy Result 2006   

Colazal  -  3X3 daily 

Entocort - 3 daily

Nexium

Folic Acid 

Ferrous Sulfate - 325 mg X3 daily

Vitamin C - 500 mg 

Canasa - As Needed

 

 

 

Thanks, everybody. I haven't asked my GI about entocort yet but I am going to try and gradually switch over if he lets me.

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Pancolitis dx'd 1986, full med-free remission 88-97

Flaring or simmering ever since

10 20 mg pred, 100 mg Imuran

Probiotics (mainly Primal Defense)

Turmeric/circumin, various vitamins/minerals,

Low-carb version of Specific Carb Diet

I was steroid-dependent and on Entocort for several years. It helped me a lot. Supposedly it produces fewer of the long-term side effects. And I'm pretty sure it's FDA-approved for UC, because my insurance covered it.

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Judy