Entocort (budenoside) for UC?

Probiotic

Veteran Member

Joined : Mar 2007

Posts : 2832

Posted 10/19/2007 9:44 PM (GMT -6)

Has anyone here managed to try Entocort for their UC? I guess in the US it is only approved for CD. My UC is sometimes considered on the indeterminate side, and also, I have heard that it is used for UC in some other countries, so I'm interested in seeing if I could get off pred and more onto entocort until I can get off the poison altogether.

Pancolitis dx'd 1986, full med-free remission 88-97

Flaring or simmering ever since

10 20 mg pred, 100 mg Imuran

Probiotics (mainly Primal Defense)

Turmeric/circumin, various vitamins/minerals,

Low-carb version of Specific Carb Diet

jano437

Veteran Member

Joined : Jul 2005

Posts : 1614

Posted 10/19/2007 9:55 PM (GMT -6)

I have been on Entocort during flare ups and it works great. It does take awhile to work though. Give it about a month to see any kind of improvement. I did get a headache from it, but the headache goes away after about a week. I have also been on pred, and I would take Entorcort any day. Just give it a month to work.

Janice

Diagnosed July 2005 with Pancolitis

Asacol 4 tabs 3 times daily

GNC Probiotic

Forvia

calcium

Currently in Remission

http://mysite.verizon.net/vzewor6c

Wiped Out

Regular Member

Joined : Jun 2007

Posts : 71

Posted 10/19/2007 10:04 PM (GMT -6)

After trying to do without Colazal I went into a flare over a year ago. I had to go back on Colazal and was prescribed Entocort in addition. It stopped the bleeding and I have been on it ever since. Just finished a colonoscopy Wed. and awaiting lab results. I still have some bleeding at times and the UC still is active. I'd hate to think what would happen if I tried to get off anything now. Lab results due early next week and I'm apprehensive because of what they found last year.

Left-sided UC Diagnosed 2004

Iron Deficiency Anemia Diagnosed 2007

Indeterminate Dysplasia Biopsy Result 2006

Colazal - 3X3 daily

Entocort - 3 daily

Nexium

Folic Acid

Ferrous Sulfate - 325 mg X3 daily

Vitamin C - 500 mg

Canasa - As Needed

redplum

Regular Member

Joined : Sep 2007

Posts : 49

Posted 10/20/2007 4:55 PM (GMT -6)

I use compounded Budesonide enemas. I have been using them for 5 years. They work great for the left side and has kept the inflammation there at a minimum. Entocorts active ingredient is also Budesonide. I am not sure if they actually sell Entocort brand enemas here in the US by prescription.

Probiotic

Veteran Member

Joined : Mar 2007

Posts : 2832

Posted 10/20/2007 5:44 PM (GMT -6)

Thanks, everybody. I haven't asked my GI about entocort yet but I am going to try and gradually switch over if he lets me.

Pancolitis dx'd 1986, full med-free remission 88-97

Flaring or simmering ever since

10 20 mg pred, 100 mg Imuran

Probiotics (mainly Primal Defense)

Turmeric/circumin, various vitamins/minerals,

Low-carb version of Specific Carb Diet

relativelyquantum

Regular Member

Joined : Sep 2007

Posts : 196

Posted Today 9:38 PM (GMT -6)

I was on Entocort for only 3 or 4 weeks and noticed immediate improvement, going from severe to moderate in just a few days. It didn't seem to do as much for me after a week or two. My GI said that it is focused more on the upper colon (right ascending) and ileum region, while prednisone is more general. The side affects are far less severe than prednisone, but like any steriod it can still throw you out of wack for a little while.

Pancolitis '04

Yet to go into remission, Flare-up since Aug 12th and still atempting to work in the midst of it

On Lialda (2/dy), probiotics, Oriental Medical Tea & Prescribed Diet, Greens+, Fish Oil

jujub

Elite Member

Joined : Mar 2003

Posts : 10407

Posted Today 11:58 PM (GMT -6)

I was steroid-dependent and on Entocort for several years. It helped me a lot. Supposedly it produces fewer of the long-term side effects. And I'm pretty sure it's FDA-approved for UC, because my insurance covered it.

Judy

Left-sided UC diagnosed 2001. Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years!

Now in remission for almost two years. Remicade has been my wonder drug.

"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."

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