I can't take the sulfa drugs anymore either. I stopped them cold turkey and went into my worst flare ever (started last month). After 1.5 mos on predinsone and 3 weeks on hydrocortisone enemas, I have gone from 20-30 times a day down to 5 to 10 times a day, still not good but much more manageable. At first I had to do the hydrocortisone enema's during the day b/c nights were much worse for me and I could hold them in for at least a couple of hours, now I can hold them in at night for about
6 hours. Maybe after being on the foam for a while you will be able to hold the regular ones???
I just started Imuran a week ago and have remicade tests pending. I am so sorry you are going through all this, I know how terrible it is to not be able to take the sulfa drugs when they worked and worked well. Imuran can take a few months to work though, which is why I may go to remicade.
What happened to you, that you could not take the sulfasalazine? For me it is believed to have cause my kidney disease.
I don't know about
hair loss, but I am scared.........It's only been a week for me.
UC Diagnosed March 2000
Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;
Lialda 2.4mg 1xday since 8/24/07 ; prev. Asacol 4800mg day
Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.