Remicade not working - Humira, Enbrel etc..

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whataboutyouphil
New Member


Date Joined Oct 2007
Total Posts : 4
 		   Posted 10/20/2007 3:10 PM (GMT -6)   
I was on Remicade and my body built up an immunity after months of it working great. Docs increased the dosage and frequency with no luck.

Anyone have this happen with Remicade and what did you do? I am hoping that Humira or Enbrel will get approval and be out of trials soon.

I can not get into remission and I am stuck on steriods, which of course I can't stay on for long because of all the bad side effects.

Docs keep talking about surgery.

Anyone?

Thanks!
 
I just expanded on your post title for more responses.

Post Edited By Moderator (Red_34) : 10/21/2007 6:34:11 AM (GMT-6)

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Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
 		   Posted 10/21/2007 6:38 AM (GMT -6)   
Hi there and welcome to Healingwell. I have no advice for you since I'm not to the Remicade option yet. I just wanted say welcome and to bump your thread to the top for others to see.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
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gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
 		   Posted 10/21/2007 6:50 AM (GMT -6)   
are you in an area that does any research?  my doc does and i know there is a nationwide research study on humira for uc right now or very soon.  there are actually 3-4 studies going on right now.  one is for those that did n't respond specifically to remicade.  check into it.  i have gone into remission only through the studies i have done.  they are very safe to do now a days.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
 		   Posted 10/21/2007 1:07 PM (GMT -6)   
my friends Dad is on the drug trial for Humira right now for UC, unfortunately they think he is on the placebo, it is not helping him though once the 8 weeks is up if he is on the placebo they will start him on the Humira so maybe in the long run it is not unfortunate and it will help him.
Beth, 32
UC Diagnosed March 2000
Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day
Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

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Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
 		   Posted 10/21/2007 2:22 PM (GMT -6)   
Have you every tried Imuran (azathioprine) or 6mp?  My doctor has me on azathioprine together with the Remicade to prevent such an immunity from happening.  Ask your doctor about that.
KTM

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jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
 		   Posted 10/21/2007 2:28 PM (GMT -6)   
My doctor's group is participating in one of the humira tests, and my understanding is that the early results showed it to be no more effective than Remicade overall, and more expensive. However for some people it worked better. 
 
My doc also recommends Imuran along with Remi to prevent the development of allergic reactions.
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."

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beanie6421
Regular Member


Date Joined Feb 2003
Total Posts : 51
 		   Posted 10/22/2007 9:14 AM (GMT -6)   
I did Remicade three or four times, never noticed much, except I received it where patients were being treated for cancer, so it was a great reminder of how much worse I could be.

The last try, I got severe temporary arthritis, and needed a ton of Prednisone to get back to normal, so the doc says I'm considered allergic to it and can't try again.
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