HealingWell
Search Close Search
☰

Remicade not working - Humira, Enbrel etc..

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/20/2007 1:10 PM (GMT -8)
I was on Remicade and my body built up an immunity after months of it working great. Docs increased the dosage and frequency with no luck.

Anyone have this happen with Remicade and what did you do? I am hoping that Humira or Enbrel will get approval and be out of trials soon.

I can not get into remission and I am stuck on steriods, which of course I can't stay on for long because of all the bad side effects.

Docs keep talking about surgery.

Anyone?

Thanks!

I just expanded on your post title for more responses.

Post Edited By Moderator (Red_34) : 10/21/2007 6:34:11 AM (GMT-6)

Posted 10/21/2007 4:38 AM (GMT -8)
Hi there and welcome to Healingwell. I have no advice for you since I'm not to the Remicade option yet. I just wanted say welcome and to bump your thread to the top for others to see.
Posted 10/21/2007 4:50 AM (GMT -8)
are you in an area that does any research?  my doc does and i know there is a nationwide research study on humira for uc right now or very soon.  there are actually 3-4 studies going on right now.  one is for those that did n't respond specifically to remicade.  check into it.  i have gone into remission only through the studies i have done.  they are very safe to do now a days.

Posted 10/21/2007 11:07 AM (GMT -8)
my friends Dad is on the drug trial for Humira right now for UC, unfortunately they think he is on the placebo, it is not helping him though once the 8 weeks is up if he is on the placebo they will start him on the Humira so maybe in the long run it is not unfortunate and it will help him.
Posted 10/21/2007 12:22 PM (GMT -8)
Have you every tried Imuran (azathioprine) or 6mp?  My doctor has me on azathioprine together with the Remicade to prevent such an immunity from happening.  Ask your doctor about that.

Posted 10/21/2007 12:28 PM (GMT -8)
My doctor's group is participating in one of the humira tests, and my understanding is that the early results showed it to be no more effective than Remicade overall, and more expensive. However for some people it worked better. 

My doc also recommends Imuran along with Remi to prevent the development of allergic reactions.

Posted 10/22/2007 7:14 AM (GMT -8)
I did Remicade three or four times, never noticed much, except I received it where patients were being treated for cancer, so it was a great reminder of how much worse I could be.

The last try, I got severe temporary arthritis, and needed a ton of Prednisone to get back to normal, so the doc says I'm considered allergic to it and can't try again.
✚ New Topic ✚ Reply