HealingWell
Search Close Search

Whats your longest period without symptoms(remission)?

HealingWell Forum
>
Ulcerative Colitis
>
Whats your longest period without symptoms(remission)?  
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/21/2007 10:56 AM (GMT -7)
I know i posted a similar thread last year but i think that us UCers need reminding that many of us do gain remission and stay symptom free for long periods. My longest is around 4 years, during that period i had stopped all medications.

  So whats your and was there something that you identified that triggered that flare. Sometimes stress or when early spring comes( when my allergies kick in) i start flaring.

  Remember people to keep the faith!!!!!!!!!

                         Marty

                                     keep the faith

                      asacol/proctifoam/Zoton (lansoprazole)



http://www.myspace.com/martybuzz1<FONT]

Posted 10/21/2007 10:59 AM (GMT -7)
Lucky me I have been good since 1991 :-)
Posted 10/21/2007 11:00 AM (GMT -7)
Wow that is some record!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1
                                     keep the faith

                      asacol/proctifoam/Zoton (lansoprazole)



http://www.myspace.com/martybuzz1<FONT]

Posted 10/21/2007 11:11 AM (GMT -7)
I had 9-1/2 solid and med-free years. Retrospectively I blame some antibiotics usage in the two years leading up to the relapse. However, because my remission was so solid, I felt invincible and truly felt that I had been mis-diagnosed all along.
Pancolitis dx'd 1986, full med-free remission 88-97

Flaring or simmering ever since

10 20 mg pred, 100 mg Imuran

Probiotics (mainly Primal Defense)

Turmeric/circumin, various vitamins/minerals,

Low-carb version of Specific Carb Diet

Posted 10/21/2007 7:42 PM (GMT -7)

1991-2005 no problems. Both huge flairs came in times of intense stress in my personal life. I started on Colazal on 9/18/07 and have absolutely NO symptoms right now. yeah yeah yeah

Dx'D in 1990. Remission 1991 - 1/2005

Both flares were in extremely stressful times in my life

Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"

*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.

Colazal 9 capsules a day*****

Posted 10/21/2007 7:53 PM (GMT -7)
Had my first flare in the fall of 2004, put on asacol, went into remission for a year and 5 months...been flaring since spring of 2006...
Diagnosed Fall of 2004

Meds:
6MP 1/2tab x 2 25mg ("re-challenging" 6mp)
Remicade 4 infusions
Prednisone 25mg (down to 5mg taper a week)
Citrucil 6-8 capsules a day

Posted 10/21/2007 9:07 PM (GMT -7)
In the last seven years, my longest stretch of remission was 10 months. (I can't remember before that... hopefully it was longer!) I've had about 7.5 good months this year... with only a couple bad weeks in there. I'm aiming high and hoping this lasts for a long time!

It's amazing to read that people have been in remission for many years. Very encouraging for those of us who still count the good months, weeks, or days.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.

Posted 10/21/2007 9:55 PM (GMT -7)
I don't think I have ever had a complete year (in all 46) of total remission. But then I have not had any really bad, bad flares that lasted a long time since I was in my twenties.
I mostly have good months and then not so good months.

Maybe I am just so used to living like this, I don't even know what normal is any more.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm

Posted 10/24/2007 7:55 PM (GMT -7)
There is hope! My longest is 6 months...I was still counting until a few days ago when constipation set in with left side pain.
Diagnosed Pancolitis Feb 06
Probiotics, Multi-vitamin.
Asacol 4x2 daily, Azathoprine 100mg since 2/2007, Canasa as needed
"There is a time and purpose for everything."
I'm still trying to figure out the purpose of getting UC!!!!!!!! urg

Posted 10/24/2007 8:39 PM (GMT -7)
how about 0 days remission the past 1.5 years since being diagnosed lol  that's some record.  supposed to be scheduled for remicade next week for the first time, so hopefully things will change.

---Nathan---  31 yr old male

Diagnosed May 2006 w/severe UC

Currently in mild/moderate flare

2 400mg Asacol 4X day

20 mg Prednisone

1 multivitamin/day

2 grams calcium/day

75mg Imuran/day

100mg Tramadol/day for abdominal pain (as needed)

1 Fioricet ever 4 hrs as needed for severe migraines

Posted 10/25/2007 6:57 AM (GMT -7)
My last five years or so have been pretty much symptom-free. Getting complacent and lax with my diet put me back in a flare.
Diagnosed with ulcerative colitis spring 1999

C-scope confirmed UC diagnosis 9/18/2007

No explanation for right side pain and thickening of bowel wall

 

Therapeutic dose sulfasalazine, back on a pred taper for first flare in years

Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.

Posted 10/25/2007 8:21 AM (GMT -7)
almost the same as Princesa, while on 5ASA's my 7 years were pretty much symptom free as long as I took my meds........ah the days!!!!
Beth, 32

UC Diagnosed March 2000

Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.

Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007

Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 10/25/2007 11:30 AM (GMT -7)

This matches my situation almost identically. One Gastro specialist I saw didn't think I had UC (thought I had IBS) because I was inactive with no meds for 9 years. Turns out he was wrong. Colonoscopy confirmed it.

Probiotic said...
I had 9-1/2 solid and med-free years. ... However, because my remission was so solid, I felt invincible and truly felt that I had been mis-diagnosed all along.

Posted 10/25/2007 4:53 PM (GMT -7)
I had 18 months no meds and in remission. Starting Remicade tomorrow so i guess i'll now have a longest in remission while on drugs. Well...if it works anyway. :P
dx late April 2005 with pancolitis UC after birth of my son (second child)... meds didn't work (or rather they would work and then randomly stop)

Started SCD and vit e enemas 12/9/05...that and meds = remission 12/11/05, off meds 12/20 (were on the way out before that), stopped continuous enemas 3/23 and use them only when I feel a flare coming on. 

Beautiful perfect baby boy born with no drugs and only vit e enemas during pg - 10/14/07

He also had no gas or discomfort while nursing from me being on the diet.

Didn't use the enemas last flare since I was nursing and regretting it now, wasted time in the hospital with drugs that did nothing but ravish my body, now on my own and almost better... vit e, weaning pred, licorice

✚ New Topic ✚ Reply

Forum Information

Currently it is Sunday, December 09, 2018 1:10 PM (GMT -7)
There are a total of 3,026,152 posts in 330,990 threads.
View Active Topics

Who's Online

This forum has 162575 registered members. Please welcome our newest member, Ashram.
130 Guest(s), 9 Registered Member(s) are currently online.  Details
Megan H, R85ERT, WalkingbyFaith, CalmLittleBuddha, Szabo246, RunJerRun, lymelearner, Steve n Dallas, Labradorite