Whats your longest period without symptoms(remission)?

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marty1976
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Date Joined Nov 2005
Total Posts : 2045
   Posted 10/21/2007 10:56 AM (GMT -7)   
I know i posted a similar thread last year but i think that us UCers need reminding that many of us do gain remission and stay symptom free for long periods. My longest is around 4 years, during that period i had stopped all medications.
  So whats your and was there something that you identified that triggered that flare. Sometimes stress or when early spring comes( when my allergies kick in) i start flaring.
  Remember people to keep the faith!!!!!!!!!
                         Marty


                                     keep the faith

                      asacol/proctifoam/Zoton (lansoprazole)



http://www.myspace.com/martybuzz1<FONT]


Rick012
New Member


Date Joined Oct 2007
Total Posts : 3
   Posted 10/21/2007 10:59 AM (GMT -7)   
Lucky me I have been good since 1991 :-)

marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 10/21/2007 11:00 AM (GMT -7)   
Wow that is some record!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1
                                     keep the faith

                      asacol/proctifoam/Zoton (lansoprazole)



http://www.myspace.com/martybuzz1<FONT]


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 10/21/2007 11:11 AM (GMT -7)   
I had 9-1/2 solid and med-free years. Retrospectively I blame some antibiotics usage in the two years leading up to the relapse. However, because my remission was so solid, I felt invincible and truly felt that I had been mis-diagnosed all along.
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 mg pred, 100 mg Imuran
Probiotics (mainly Primal Defense)
Turmeric/circumin, various vitamins/minerals,
Low-carb version of Specific Carb Diet
 
 
 


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 10/21/2007 7:42 PM (GMT -7)   
1991-2005 no problems. Both huge flairs came in times of intense stress in my personal life. I started on Colazal on 9/18/07 and have absolutely NO symptoms right now. yeah yeah yeah

Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 10/21/2007 7:53 PM (GMT -7)   
Had my first flare in the fall of 2004, put on asacol, went into remission for a year and 5 months...been flaring since spring of 2006...
Diagnosed Fall of 2004

Meds:
6MP 1/2tab x 2 25mg ("re-challenging" 6mp)
Remicade 4 infusions
Prednisone 25mg (down to 5mg taper a week)
Citrucil 6-8 capsules a day


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 10/21/2007 9:07 PM (GMT -7)   
In the last seven years, my longest stretch of remission was 10 months. (I can't remember before that... hopefully it was longer!) I've had about 7.5 good months this year... with only a couple bad weeks in there. I'm aiming high and hoping this lasts for a long time!

It's amazing to read that people have been in remission for many years. Very encouraging for those of us who still count the good months, weeks, or days.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 10/21/2007 9:55 PM (GMT -7)   
I don't think I have ever had a complete year (in all 46) of total remission. But then I have not had any really bad, bad flares that lasted a long time since I was in my twenties.
I mostly have good months and then not so good months.

Maybe I am just so used to living like this, I don't even know what normal is any more.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


mellybelly
Regular Member


Date Joined May 2006
Total Posts : 145
   Posted 10/24/2007 7:55 PM (GMT -7)   
There is hope! My longest is 6 months...I was still counting until a few days ago when constipation set in with left side pain.
Diagnosed Pancolitis Feb 06
Probiotics, Multi-vitamin.
Asacol 4x2 daily, Azathoprine 100mg since 2/2007, Canasa as needed
"There is a time and purpose for everything."
I'm still trying to figure out the purpose of getting UC!!!!!!!! urg


UCreallySUCKS
Regular Member


Date Joined May 2006
Total Posts : 260
   Posted 10/24/2007 8:39 PM (GMT -7)   
how about 0 days remission the past 1.5 years since being diagnosed lol  that's some record.  supposed to be scheduled for remicade next week for the first time, so hopefully things will change.

---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC
Currently in mild/moderate flare
2 400mg Asacol 4X day
20 mg Prednisone
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/25/2007 6:57 AM (GMT -7)   
My last five years or so have been pretty much symptom-free. Getting complacent and lax with my diet put me back in a flare.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/25/2007 8:21 AM (GMT -7)   
almost the same as Princesa, while on 5ASA's my 7 years were pretty much symptom free as long as I took my meds........ah the days!!!!
Beth, 32
UC Diagnosed March 2000
Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 10/25/2007 11:30 AM (GMT -7)   

This matches my situation almost identically. One Gastro specialist I saw didn't think I had UC (thought I had IBS) because I was inactive with no meds for 9 years. Turns out he was wrong. Colonoscopy confirmed it.

Probiotic said...
I had 9-1/2 solid and med-free years. ... However, because my remission was so solid, I felt invincible and truly felt that I had been mis-diagnosed all along.


DeniseW
Regular Member


Date Joined Nov 2005
Total Posts : 346
   Posted 10/25/2007 4:53 PM (GMT -7)   
I had 18 months no meds and in remission. Starting Remicade tomorrow so i guess i'll now have a longest in remission while on drugs. Well...if it works anyway. :P
dx late April 2005 with pancolitis UC after birth of my son (second child)... meds didn't work (or rather they would work and then randomly stop)
Started SCD and vit e enemas 12/9/05...that and meds = remission 12/11/05, off meds 12/20 (were on the way out before that), stopped continuous enemas 3/23 and use them only when I feel a flare coming on. 
Beautiful perfect baby boy born with no drugs and only vit e enemas during pg - 10/14/07
He also had no gas or discomfort while nursing from me being on the diet.
Didn't use the enemas last flare since I was nursing and regretting it now, wasted time in the hospital with drugs that did nothing but ravish my body, now on my own and almost better... vit e, weaning pred, licorice
 

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