just some advice please

 

If the Asacol is no longer working for you then you can request Colazal or Lialda in addition to rectal meds such as Rowasa or Salofalk (depending on where you're from). But wherever you are from, definately ask for rectal meds, they really do help! :) Just tell the GP exactly what is going on and if he/she is clueless - define it better for them because even though we may think we are clear in our explanations, sometimes they come out clear as mud. Been there, done that!

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Hi Red

thanks for that i live in n ireland and my GP assured me he had good knowledge of UC when i joined his practice after moving six years ago, but as of todate ive not had one blood test or asked to see a consultant at the hospital.
As ive said im of an age where i should be standing up and shouting i need help but i havent and maybe its my fault i feel as crap as i do

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Diagnosed UC 1993

Hi wishiwasnormal,

Hi Jepa

Thanks for that
When ive been to the gp before ive felt like he just wants me out of the surgery and im ok because im working.

I know i have to make a bit more noise this time

Out of interest what medication are you on

thank you again

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Diagnosed UC 1993

Hi,

I just went through a really bad flare-up, which took over 8 months to get under control, so I'm delighted that both my GP and GI consultant are well aware of my condition and know me personally. I have been through multiple courses of stereoids and am now on 100 mg Imuran, 2400 mg Asacol.

The imuran seems to be working fine with me and no serious side effects, though there is an increased amount of hair loss, not noticeable though. I recon I'm just paranoid after reading so many reviews here on the net The problem is, that we'd like to start a family soon and Imuran isn't recommended while pregnant, so it's a hard decision what to do next.

 

 

Have you stood up and noisily requested rectal meds? It's been suggested, many of us use them and they do work. Please call your doc and get them as soon as possible. As well, do the research and have it handy to give him a copy.

q

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sometimes you just have to ask. my GI didnt offer rectal meds at all, I didnt know anything about them till this site and quincy. So I ask my doctor and he said oh yes are you not on them yet, I think sometimes they get to busy and dont remember everything. but they worked wonders for me. good luck

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Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

Consider writing out what you want to tell the GP before you go. Then, when you feel uncertain about stating your needs during the visit, you can just read your statement to him/her. It's easy to get overwhelmed and intimidated in the doctor's office, especially if you feel your practitioner doesn't really care about you and when you're feeling bad. Having what you want to say or ask written down can help you get it out.

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