Posted 10/22/2007 10:57 AM (GMT -7)
Well, OF COURSE, the doc is in surgery so I can't see him till tomorrow. Fine and all except we're 4 hours from home and Dh is having to miss work.
Anyway, I'm hoping he'll say remicade b/c it looks like the quickest fix I have left. Is that true? How long does it take for it to start working? I'm going to miss a lot this holiday if I have to wait 3 months for Imuran to start working, IF it starts working. It looks like it either doesn't really work at all, or it works in a few days.
So how long?
:( In the meanwhile I'm going to start taking pred again after being off it a month. I know it won't make me better, but maybe it'll cut down the blood/pain/urgency to a managable level. :(
I'm really ready to look into surgery. I would have signed up already if it was a sure thing a j-pouch would work. :(
dx late April 2005 with pancolitis UC after birth of my son (second child)... meds didn't work (or rather they would work and then randomly stop)
Started SCD and vit e enemas 12/9/05...that and meds = remission 12/11/05, off meds 12/20 (were on the way out before that), stopped continuous enemas 3/23 and use them only when I feel a flare coming on.
Beautiful perfect baby boy born with no drugs and only vit e enemas during pg - 10/14/07
He also had no gas or discomfort while nursing from me being on the diet.
Didn't use the enemas last flare since I was nursing and regretting it now, wasted time in the hospital with drugs that did nothing but ravish my body, now on my own and almost better... vit e, weaning pred, licorice