? for Remicade users

Scrap Girl

Veteran Member

Joined : Jan 2007

Posts : 653

Posted 10/23/2007 8:47 AM (GMT -7)

Are any of you on only Remicade now? I'm also taking Colazal and it might be causing my massive hair loss so my GI told me I could stop taking it to see if it stops. Things are going so well now I hate to stop if it's going to throw me into a flare. I used to take Asacol but after a while it caused me to lose hair too so I switched to Colazal. I need to do something or I'm going to be shopping for wigs soon.

Diagnosed with UC in Feb. 2005

Colazal (9 a day)

Folic Acid

Remicade remission

Meesh

Veteran Member

Joined : May 2006

Posts : 619

Posted 10/23/2007 1:44 PM (GMT -7)

I'm on Remicade and Lialda (similar to Colazal and Asacol but just taken once a day). Almost off the Prednisone. The Remicade pretty much does the trick for me but I never seem to feel 100% anymore :-(

Diagnosed UC April 27, 2006

Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07; 3rd infusion 10/13/07

Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alternating 5/0 mg; Xanax; Lexipro, ~~Rowesa;~~ ~~Asacol; Colazal three 750 mg capsules 3X day~~;

[2/22/07 started Imuran, off within two weeks due to bad reaction]

SheriMc

Regular Member

Joined : May 2005

Posts : 103

Posted 10/23/2007 2:35 PM (GMT -7)

I pretty much stopped taking my Colazal and only do the remicade now. So far I've had no problems. I don't know if it's wise to do that, I may regret it later, but for now it seems to be working by itself.

9 colazal's a day

Remicade treatments every 8 weeks

Multivitamin

B-12 shots once a month

Iron infusions once a year

Got off Prednisone in March '07, was on it for 6 months

jujub

Elite Member

Joined : Mar 2003

Posts : 10416

Posted 10/23/2007 3:47 PM (GMT -7)

I need the Colazal, Imuran and Remicade working together to keep me in remission. I have been able to drop to six colazal a day, but that's as low as I can get.

Judy

Left-sided UC diagnosed 2001. Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years!

Now in remission for almost two years. Remicade has been my wonder drug.

"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."

summerstorm

Veteran Member

Joined : Aug 2006

Posts : 6571

Posted 10/23/2007 7:45 PM (GMT -7)

were you sick recently, or just recently gotten off steroids?

Scrap Girl

Veteran Member

Joined : Jan 2007

Posts : 653

Posted 10/23/2007 8:08 PM (GMT -7)

I have been off prednisone for three months or so. I was on it for about 14 months - arrghh! But my hair loss started about the same time I started taking azathioprine around December or January. So I was thinking that maybe the hair loss might have been from that but I have been off azathioprine for four months and I'm still losing it. As a sidenote, the azathioprine also made my hair very coarse and kinky. My head looks like a brillo pad, especially if I get caught out in the rain. However, since I got off the azathioprine a couple of inches have grown out, straight and soft. That gives me a little hope.

Diagnosed with UC in Feb. 2005

Colazal (9 a day)

Folic Acid

Biotin

Calcium

Remicade remission

summerstorm

Veteran Member

Joined : Aug 2006

Posts : 6571

Posted 10/23/2007 8:21 PM (GMT -7)

azathroprine can cause hair loss too. The reason i asked about the pred was usually about three months after ending pred you will notice some hair loss, in my case it was always ALOT. Also usually about three months (your hair grows in three moths cycles) after being very sick you will notice a hair loss. I took azathoprine for years and didnt' have trouble wtih that, but maybe the combo of stuff is causing your problem. hope it gets better!

RMA

Regular Member

Joined : Aug 2004

Posts : 79

Posted 10/24/2007 1:05 PM (GMT -7)

Hello

I am on Remicade and colazal ...have not notice hair loss

9 a day since May .

Had my second infusion 10-16...next one 11-27..still flaring ...good luck to you

REMIDCADE 10-02-07

colazal 750mg 3x3 a day
mercaptopurine 50mg 1 a day

allopurinol 100 mg
rowasa enema pm
multi vitamin
folic acid
fish oil

dx 2004 uc

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