a step backwards, ughh!

icanrace

Regular Member

Joined : Sep 2007

Posts : 221

Posted 10/23/2007 9:36 AM (GMT -7)

Since last Thursday things started getting better for me. I have had formed stools since then with minimal blood.

Yesterday afternoon I went to the rr and was surprised by the amount of blood that just appeared out of nowhere. There was more blood in the stool which wasn't very present the days before. I could still see blood but it wasn't that much. It was mainly noticable on the tp.

Anyway, I just had another bm and there was blood yet again. What is going on here I wonder? Getting better for a few days and then BAM more red blood.

Does this make sense to anyone? Could something I ate of triggered this again?

Prednisone 10mg (1.5) tabs twice per day= 30mg per day

Asacol 400mg (3) tabs twice per day= 2400mg per day

started both meds on Thursday 10-4-2007

10-22-07- coming out of about an 8 week flare (my first one ever)

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 10/23/2007 9:46 AM (GMT -7)

Have you started tapering pred? Changed anything med wise?

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

https://www.healingwell.com/donate
Co-Moderator UC Forum

icanrace

Regular Member

Joined : Sep 2007

Posts : 221

Posted 10/23/2007 9:50 AM (GMT -7)

I just started tapering Pred today. From 40mg to 35mg. Those instructions were given to me from my dr, but the blood didn't start showing back up (worse) until after I talked to them. The blood actually came back before any med adjustments.

UCreallySUCKS

Regular Member

Joined : May 2006

Posts : 260

Posted 10/23/2007 9:53 AM (GMT -7)

When I was in the middle of a severe flare last year, I would get better, get worse, get better again...it was a rollercoaster for a couple months. (I was also on 40mg of prednisone at the time) But overall, I got better. Each increase in symptoms was a little less than the last time. I used a daily log of everything to show myself that it wasn't as bad.

---Nathan--- 31 yr old male

Diagnosed May 2006 w/severe UC

Currently in mild/moderate flare

2 400mg Asacol 4X day

20 mg Prednisone

1 multivitamin/day

2 grams calcium/day

75mg Imuran/day

100mg Tramadol/day for abdominal pain (as needed)

1 Fioricet ever 4 hrs as needed for severe migraines

icanrace

Regular Member

Joined : Sep 2007

Posts : 221

Posted 10/23/2007 10:00 AM (GMT -7)

UCreallySUCKS said...
When I was in the middle of a severe flare last year, I would get better, get worse, get better again...it was a rollercoaster for a couple months. (I was also on 40mg of prednisone at the time) But overall, I got better. Each increase in symptoms was a little less than the last time. I used a daily log of everything to show myself that it wasn't as bad.

makes sense because that's what I'm sensing right now. I feel great actually other than the blood. I started working out again which I always have 5-6 days a week. I actually think this Prednisone makes me feel good, lol. High energy, good focus, decent mood and even a sense of well being. I just need this blood to stop!

I really appreciate everyones replies and help with my questions / concerns!

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 10/23/2007 10:14 AM (GMT -7)

Whenever I have tapered pred. I always see a surge in symptoms for a few days while my body adjusts. I would keep an eye on it. Glad you are feeling good though!

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

https://www.healingwell.com/donate
Co-Moderator UC Forum

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2148

Posted 10/23/2007 10:37 AM (GMT -7)

I am kind of in the same situation you are. I know I am better than I was two weeks ago overall, however, some days I have increased bm's and some days are less and some days I have more formed stools than others. I feel like I take 1 step ahead then 1/2 a step back every few days. I hope I am coming out of a severe flare. I was going 20 -30 times a day all diarreah and blood for two weeks straight unable to sleep horrible cramping, everything. Last night I only got up 1x around 4am for a bm (only 1x at night a few days this past week too) today I only had 2 bm's before leaving the house and 2 bm's at work and I think I will be okay until later tonite. So I am still going 5 to 10 times a day but with light blood semi formed small stools and only light cramping (not keel over nauseating cramping) this has been over the past week. I am still really scared that I will start to get worse again.

Beth, 32

UC Diagnosed March 2000

Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;~~Lialda 2.4mg 1xday since 8/24/07~~ ;~~prev. Asacol 4800mg day~~

Calcium and Vit D 500mg 3xday.

Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007

Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

princesa

Veteran Member

Joined : Aug 2007

Posts : 2204

Posted 10/23/2007 11:29 AM (GMT -7)

Could be hemorrhoids. A large and/or firmer bowel movement than you're used to having can stir them up, causing a sudden increase in bright red blood - especially on the toilet paper.

Diagnosed with ulcerative colitis spring 1999

C-scope confirmed UC diagnosis 9/18/2007

No explanation for right side pain and thickening of bowel wall

Maintenance dose sulfasalazine, back on a pred taper for first flare in years

Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5195

Posted 10/23/2007 3:24 PM (GMT -7)

I agree with Princesa's assessment re bright red blood on t.p. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily; seem to be back in remission)

Probiotic

Veteran Member

Joined : Mar 2007

Posts : 2832

Posted 10/23/2007 3:46 PM (GMT -7)

Just FYI and so you know it is not unusual, I was doing TONS of two steps forward, two steps back (oftentimes, one forward, two back etc) during the very gradual improvement, over 2 years, from my first massive flares to my 9+ year, completely med-free remission. Granted, that remissiosn is ancient history and my best remissions nowadays last months and are not even completely pred-free anymore, but I just wanted to point out that it can happen.

To get into that long remission, I had to learn to ignore the pred tapering docs recommended and go much slower, and be prepared to bump back up to whatever level prevented bleeding, baring in mind that it takes a few days to a week or two for a smaller pred increase to kick in vs a big one that can kick in within a couple days (but, once you have burnt yourself out on high pred doses, you just don't want to do again). Not that I would recommend pred to anyone.... but I just happen to be intolerant of all 5ASAs so it was that or lose my colon years ago I guess. However, I did get that long, long remission and it was 100 percent med-free, nothing to sneeze at.

Pancolitis dx'd 1986, full med-free remission 88-97

Flaring or simmering ever since

10 20 mg pred, 100 mg Imuran

Probiotics (mainly Primal Defense)

Turmeric/circumin, various vitamins/minerals,

Low-carb version of Specific Carb Diet

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