Sorry, you are so young to be dealing with this. I was 24 when I was dx'd and thought it was bad enough then.
I'm no expert, but as I did get older through high school, I used to go 1 to 2 times per week and then eventually once a day, maybe it's a getting older thing? As for the meds, the doc's should not just be treating you when you flare up, you should be on a maintenance med to keep you from flaring. For me I was taking the sulfa drugs for 7 years and I would only flare when I did not take my meds when I was supposed to. I'm not sure if you are taking meds in between flares?
I'm not sure about
your stomach, but I did have the same thing when I was flaring really, really bad, I would be very hungry and start to eat and feel full quickly and then cramp up and have a bm. Not sure what that was, it's pretty much gone away, but I have other stomach ailments that my Doc's just shake their heads at.
My advice would be to talk to your Doc about
maintenance drugs and research every drug you are on for every side effect and hypersensitvity and look into the side effects and see what you can find. It took me 7 years to find out why my ankles were swelling..........
Sorry you have to go through this and I wish you the best. I know how hard it is just to be 16 much less to deal with all this on top of it. It will make you stronger (I always try to find a silver lining).
All my best,
UC Diagnosed March 2000
Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.