what is your longest flare up??

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LSUBacchus81
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Date Joined Oct 2007
Total Posts : 53
   Posted 10/25/2007 7:42 AM (GMT -7)   
Thanks everyone!!  Im new here and look forward to your responses.   I've had UC for about 7 years now and usually flare up about twice a year, with each flare up lasting maybe a couple of weeks.  Currently Im having a flare up that now has lasted almost a month, but it is not near as bad as my normal flare ups.. Im only having 2-3 loose stools each morning with minimal blood....just kinda concerned why im not in remission yet??   Thanks your responses are MUCH appreciated!   So what is your longest flare?

UCreallySUCKS
Regular Member


Date Joined May 2006
Total Posts : 260
   Posted 10/25/2007 8:10 AM (GMT -7)   
1.5 years and counting (though it's a mild flare at the moment)

---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC
Currently in mild/moderate flare
2 400mg Asacol 4X day
20 mg Prednisone
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines


Beth75
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Date Joined Jul 2007
Total Posts : 2148
   Posted 10/25/2007 8:18 AM (GMT -7)   
My current flare about 5 months and coming out of it.........I hope!! Out of the 5 months 1 month of it on my scale of 1 to 10, 10 being horrible, it was a 10!!!
Beth, 32
UC Diagnosed March 2000
Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3534
   Posted 10/25/2007 9:37 AM (GMT -7)   

about 2 years, mild, no meds at this time. I understand about urgency. Althought, knock on wood I haven't had that in weeks nor the fear that goes with it.

 


I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07
I belive laughter is the best medicine, I need to laugh more!
 
 
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 10/25/2007 9:57 AM (GMT -7)   
My longest flare was 3 months. That is because I waited too long to see the doctor. Now I can tell when things start to slide downhill, and I get myself to the doctor at the first signs of a flare. I usally take Entocort or Prednisone for the flare, which put me into remission within days.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 10/25/2007 10:02 AM (GMT -7)   
12 years for me - symptoms ranging from mild to severe. Call it 12 years of denial and ignorance.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


LSUBacchus81
Regular Member


Date Joined Oct 2007
Total Posts : 53
   Posted 10/25/2007 10:27 AM (GMT -7)   
Thanks everyone!  Keep it coming..

UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 10/25/2007 11:18 AM (GMT -7)   
I've been at Flare up for the last two months. Sucks too! It's a "moderate" inflammation but sure doesn't feel very moderate. The Prednisone, Sulfa and Enemas sure feel like they're pushing me back to remission.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3534
   Posted 10/25/2007 12:07 PM (GMT -7)   
when do you ask your doctor for prednisone? I took a 5 day pack, it did nothing for me. Is there a different kind of pred that works better?

I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07
I belive laughter is the best medicine, I need to laugh more!
 
 
 


icanrace
Regular Member


Date Joined Sep 2007
Total Posts : 221
   Posted 10/25/2007 12:11 PM (GMT -7)   
been flaring for about 10-12 weeks. I'm coming out of it though, so I think,...............
Prednisone 10mg (1.5) tabs twice per day= 30mg per day

Asacol 400mg (3) tabs twice per day= 2400mg per day

started both meds on Thursday 10-4-2007

10-22-07- coming out of about an 8 week flare (my first one ever)


UCreallySUCKS
Regular Member


Date Joined May 2006
Total Posts : 260
   Posted 10/25/2007 12:21 PM (GMT -7)   
Never heard of being on Prednisone for only 5 days during a flare...usually takes that long just for it to start working on me.

---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC
Currently in mild/moderate flare
2 400mg Asacol 4X day
20 mg Prednisone
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3534
   Posted 10/25/2007 12:25 PM (GMT -7)   
When I went to the doctor in town he gave me cipro and a z pack, I think is what they call it. 6pills, then 5, 4, 3, 2, 1 . Just curious, b/c it sounds like people take it and they out of a flare in no time.

I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07
I belive laughter is the best medicine, I need to laugh more!
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/25/2007 12:32 PM (GMT -7)   
maybe it was the cipro that helped me, I was on that for two weeks and but I had started the pred 3 weeks before that and the hydrocortisone 1 week before the cipro......I don't know what is helping me!!! I stopped the cipro a week ago and am still getting better so maybe the pred is helping, if so it took a month and a half!
Beth, 32
UC Diagnosed March 2000
Imuran 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 10/25/2007 12:36 PM (GMT -7)   
6-9 months out of remission. Once you see blood, I know I'm in for a LONG ride. ;)
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 10/25/2007 1:24 PM (GMT -7)   
I know a few people that have been given 5 day prednisolone treatments. It is for mild symptoms.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 10/25/2007 1:30 PM (GMT -7)   
A little over five years, from the fall of 2001 until the spring of 2006. Nothing would put me into remission.
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 10/25/2007 1:33 PM (GMT -7)   
3 years was my longest flare, mostly due to steroid dependency. This one is now at about 16 months.

I did get a big long remission in between though (about 5 years with a minor blip here or there)
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


LSUBacchus81
Regular Member


Date Joined Oct 2007
Total Posts : 53
   Posted 10/25/2007 1:52 PM (GMT -7)   
that was never that effective for me.... i normally need a months worth of prednisone, usually starting at 40mg then taper over 30 days. 
therearemiracles said...
when do you ask your doctor for prednisone? I took a 5 day pack, it did nothing for me. Is there a different kind of pred that works better?



LSUBacchus81
Regular Member


Date Joined Oct 2007
Total Posts : 53
   Posted 10/25/2007 1:55 PM (GMT -7)   
Judy   how long have you been on the remicade?  any reactions??
Judilyn said...
A little over five years, from the fall of 2001 until the spring of 2006. Nothing would put me into remission.


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/25/2007 7:22 PM (GMT -7)   
I have had only 2 flares. The first one lasted about 2 ¼ years and the current one is 2 ¾ years and counting. I had a 2 year remission in-between. If I had only 2-3 loose stools each morning with minimal blood, I would consider myself in remission.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 10/25/2007 8:48 PM (GMT -7)   
I've been flaring since I got UC this past February...so I guess that's 9 months. Holy cow..I can't believe it has been that long. I only have mild inflammation now, with little symptoms - no blood, about 2-5 BMs/day..usually soft, but no D...which is not that bad, but I really want to have no inflammation and no symptoms. I've never been put on pred...only Asacol and Rowasa so far. My GI said he doesn't think I should take any "harder" drugs since I don't have much inflammation. I am wondering why it's taking me so long to get into remission.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 10/26/2007 2:05 AM (GMT -7)   
this last flare has been the longest and it has been a little over a year long now and about a 9-10/10 on the horrible-bad-flare-pain scale the whole time.
just got out of a week in the hospital.
Please watch your language, this is a family orientated website......thank you  :-)

Post Edited By Moderator (Red_34) : 10/26/2007 12:43:49 PM (GMT-6)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 10/26/2007 5:37 AM (GMT -7)   
LSUBacchus81 said...
Judy   how long have you been on the remicade?  any reactions??
Judilyn said...
A little over five years, from the fall of 2001 until the spring of 2006. Nothing would put me into remission.

I started the Remicade in March, 2007 and was definitely in remission within 2 months. I've had no side effects except mild tiredness for about 12 hours after my infusion. My doctor did have me continue the Imuran to help keep me from developing an allergic reaction to the Remi.


Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 464
   Posted 10/26/2007 6:55 AM (GMT -7)   
All my flares last a minimum of 6 months.  My current flare is the worst ever - I have been flaring now for 4 years.
Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg
 


tabitha m
Regular Member


Date Joined May 2007
Total Posts : 139
   Posted 10/26/2007 9:12 AM (GMT -7)   
6 months - going loo20+times a day, anaemic, calcium defiency, lost30 lbs , hosptial ,blah blah blah you all know the story - up until then only a couple of weeks and 5 days of pred would sort me out !
Diagnosed Proctitis 2003
leaped to Pancolitis May 2007
bye bye Pred (fingerscrossed )!
2000mg pentasa a day
omega 3
Allergic to Sulphalizine
In remission since june
Multivitamin and calcium supplement
 
 

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