So the specialist was just a surgeon, but he was able to get us in really quick (since we're out of town I'm sure) with a GI guy who is apparently a God to hear his patients talk about
him. Unfortunately he's retiring Dec 31st, but we'll deal with that later. I was scared when I went in b/c I was bleeding a lot and bad urgency, etc, so I was afraid it was getting worse. Since I didn't get to see the guy originally on Monday, I had taken 40mg pred just to try and queal the pain since it was so constant, but it did nothing. After I talked to the guy on Tuesday afternoon (before I took a second dose of pred) we decided on Remicade and Imuran which is TOTALLY stressing me out. Took 30mg pred (weaning down 10 a day till it's gone).
Well, that night I went and ate at Pancho's in a deep funk. For those who don't know what that is, it is THE worst for you fake mexican food in existance, and I ate a lot of it. Even when I'm not sick i shouldn't have made it out of there alive.
But I did. And I didn't have to go to the bathroom for 3 hours. And then it was a non-event really. So I waited all night awake for it to hit. Nothing really. Went at 4am,5am, 6am, and 9am. All mostly non-events except one that I had to wait on the bathroom. No blood, very very little pain.
WTH? The day before I couldn't eat a straight up hamburger patty...or anything AT ALL for that matter and was sick as a dog. So the 40mg of pred just miraculously works after the heavy dose in the hospital did almost nothing? And it's been getting better too. He did a sig scope yesterday and sure I felt like crap after that, but still. What, this whole time I needed to be eating the worst food possible in existance?????
So now I'm really doubting starting this super expensive treatment, however I know it will come back. I just hate so much drug, and being so bound to it to keep me well. But what the heck? Is it placebo since they are so sure I will get better on the Remicade? I don't take it till tomorrow morning. I'm so stressed about all of it, especially now since I don't know if it's the right thing to do.
I have still had a few runs to the bathroom. But this is really freaking me out. I know last time I had a colonoscopy it cleaned me out and I was well the next day, but this was even before that point. And I do still have ulcers and they were bleeding after he irritated them with the scope. But I have been more well since I started getting help Tuesday night than I have been in 5 months!!!!