Feeling better after a rough colo - very interesting news

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
 		   Posted 10/26/2007 8:37 AM (GMT -6)   
Finally some good health news, the colo revealed a fair amount of healing within my colon, which is consistent with my feeling better.  Still not in remission with some bleeding and definite urgency - but fewer movements per day and less pain.
 
This is after 3 infusions of remi, now the doc says he wants to "double" the dosage.  I knew he was giving me smaller dosages but not half - does that make sense to anyone here?
 
The general anesthesia took until late last night to wear off - but worth the lack of pain and being wide awake on the valium and memory-blocking drug normally given (I stay fully awake with that one).
 
Now at least the next is one year away...I can deal with that.
 
Thanks for listening to my rants on this one.
 
love to all
bob 
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dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
 		   Posted 10/26/2007 9:59 AM (GMT -6)   
So glad to hear your good news!

Rant away :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
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icanrace
Regular Member


Date Joined Sep 2007
Total Posts : 221
 		   Posted 10/26/2007 10:23 AM (GMT -6)   
yes, congrats on the good news!

Best of luck
Prednisone 10mg (1.5) tabs twice per day= 30mg per day

Asacol 400mg (3) tabs twice per day= 2400mg per day

started both meds on Thursday 10-4-2007

10-22-07- coming out of about an 8 week flare (my first one ever)

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quincy
Elite Member


Date Joined May 2003
Total Posts : 30842
 		   Posted 10/26/2007 12:05 PM (GMT -6)   
Interesting news....AWESOME news!! Way to go Bob. I don't know much about the Remi, but if the doc thinks a higher dosage will do better for you...then it'd be worth trying. At least he's doing a progressive treatment making sure things are going as planned.

Sounds good all along...hope you have a good weekend with that great news. Only 364 days to go till the next one..lol!

q xx
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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Red_34
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Date Joined Apr 2004
Total Posts : 23551
 		   Posted 10/26/2007 1:35 PM (GMT -6)   
That is great news Bob. Will the increased dosage of Remi interfer with your feet at all in regards to healing?
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
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jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
 		   Posted 10/26/2007 2:48 PM (GMT -6)   
Congrats on the good news

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
GNC Probiotic
Forvia
calcium 
Currently in Remission

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GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
 		   Posted 10/26/2007 8:01 PM (GMT -6)   
Hi Bob, I don't know how much remi you're on now, but doubling it doesn't surprise me that much, I've heard dosages and intervals all over the place. I also understand that they determine the dosage in 100 lb body weight amounts, so that's a pretty wide range anyway.
I weigh about 150 and am on 400 mg I think (4 vials anyway)
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December

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gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
 		   Posted 10/27/2007 10:02 AM (GMT -6)   
my doc wants to double my dose also. he said they are seeing in their uc patients that they need 2x what most crohn's need.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.

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