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Haileys Letter ONE YEAR Anniversary!!!!

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Haileys Letter ONE YEAR Anniversary!!!!  
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Posted 10/26/2007 6:16 PM (GMT -7)
 
 It has been ONE year Today that Hailey has been better. She gets stronger and stronger everyday. She still is not on any medication. I give her Natures Way Primadophilus Reuteri probiotics , Forvia and a Viactiv calcium chew daily.
 
 
 She has already been sick once this year with a cold .... and her bowels have been great even with the cold. Her body is getting stronger everyday.
 
 
 For all the new readers you can read her story under my signature. She was facing colon surgery. Now she is doing great!
 
 

 https://www.healingwell.com/community/default.aspx?f=38&m=643365&p=1<!-- Edit -->
Dave & Kelly
Daughter 7
Diagnosed at 15months with UC (pancolitis) then  Selective IgM defiency
Took many medications, no relief,GI wanted to start her on Imuran.
Took her to a natural doctor. He did a detox on her body.
Going to the restroom 15 times a day, developed pneumonia,recieved shots of Rocephin (wide sprectrum antibioitic) within24 hours of Rocephin bowels were formed.Going on Eight months without any medications and she is doing great She takes Forvia multi vitamin ,Natures Way Primadophilus Reuteri, Viactiv calcium chew, fiber chews daily
 
 
 
 
 
 
 
 
 

Post Edited (haileys letter) : 10/27/2007 8:53:21 AM (GMT-6)

Posted 10/26/2007 8:44 PM (GMT -7)
Good to see you posting :-)
Wonderful news!
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****

Posted 10/26/2007 10:18 PM (GMT -7)
Hugg's, I think of you often. Glad to see your post, you were missed.
Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 

Posted 10/26/2007 10:23 PM (GMT -7)
Glad to see your daughter is doing well. =)

Why do you give her the Viactiv?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed

Posted 10/27/2007 8:05 AM (GMT -7)
Thats so good to hear! Hope the little angel continues her good health! :)
34 year old Male
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006.
Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum

Posted 10/27/2007 6:18 PM (GMT -7)
I'm so glad to hear that Hailey is still doing well :) What a blessing! I hope it continues forever.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 10/28/2007 8:51 AM (GMT -7)
This is great news and from reading your letter it sounds like she had a bacteria of some sort that the Omnicef shot helped with. I too believe, a bacteria form could be the cause of my problems. Thank you for posting, it encourages me to continue my fight to find a healing for me.
I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07
I belive laughter is the best medicine, I need to laugh more!
 
 
 

Posted 10/28/2007 5:28 PM (GMT -7)

Thank you for all the wonder thoughts, I appreciate it :)

 I give her Viactiv calcium chews for the vitamin D and calcium. Her doctor said that 50% of people with Uc has a defiency in Vitamin D. If you google "Vitamin D and calcium and colitis" it will bring up lots of articles about how people with colitis benefit from taking Vitamin D.

 Some other news is that tonight when Hailey was getting her PJ's on I noticed she has small white blisters on her legs! My husband said it looks like Chicken Poxs! I am kinda nervous because none of my kids have had them yet. They all have had vaccines for the chicken poxs so I guess I'll wait and see what happens. Hailey said she feels okay, just that her spots itch...

Any  advice  on how to control the itching?

 Thanks!

Dave & Kelly
Daughter 7
Diagnosed at 15months with UC (pancolitis) then  Selective IgM defiency
Took many medications, no relief,GI wanted to start her on Imuran.
Took her to a natural doctor. He did a detox on her body.
Going to the restroom 15 times a day, developed pneumonia,recieved shots of Rocephin (wide sprectrum antibioitic) within24 hours of Rocephin bowels were formed.Going on Eight months without any medications and she is doing great She takes Forvia multi vitamin ,Natures Way Primadophilus Reuteri, Viactiv calcium chew, fiber chews daily
 
 
 
 
 
 
 
 
 

Posted 10/28/2007 7:05 PM (GMT -7)
Oh no! Not the chicken pox! How itchy!

Calamine lotion and baths with baking soda are what I used. But that was many years ago - well over 20 years ago!!! And the vaccine wasn't around then... Supposedly it's supposed to make the cases that children get less severe!

I hope the itching stops soon!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 10/28/2007 8:10 PM (GMT -7)

Thank you Dakotagirl for the great advice. I gave Hailey a bath with baking soda and put some anti-itch cream on her tonight. I hope she sleeps well tonight, she did have the vaccine and she only has about 15 spots on her body . So I hope she gets over this soon. I will call the doctor tommorrow I just still worry about her immune system.

 

 https://www.healingwell.com/community/default.aspx?f=38&m=643365&p=1<!-- Edit -->
Dave & Kelly
Daughter 7
Diagnosed at 15months with UC (pancolitis) then  Selective IgM defiency
Took many medications, no relief,GI wanted to start her on Imuran.
Took her to a natural doctor. He did a detox on her body.
Going to the restroom 15 times a day, developed pneumonia,recieved shots of Rocephin (wide sprectrum antibioitic) within24 hours of Rocephin bowels were formed.Going on Eight months without any medications and she is doing great She takes Forvia multi vitamin ,Natures Way Primadophilus Reuteri, Viactiv calcium chew, fiber chews daily
 
 
 
 
 
 
 
 
 

Posted 10/29/2007 5:06 AM (GMT -7)
My neice had the chicken pox recently even after having the vaccine and her case was so mild that she only broke out with a few spots. It barely even itched for her. Now when my kids were little, the vaccine was created yet and when they got theirs - oh boy did they get it! The spots covered them from head to toe. So hopefully, Hailey's will go away quickly.

And I'm so glad to hear of her continued good health. That's awesome!
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Allergies - Singulair, Allegra, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 

Posted 10/29/2007 5:41 AM (GMT -7)

Sherry,

 Thank you :)

Hailey seems good this morning. No more spots have appeared. She said they do itch but only a little bit. I just got off the phone with her doctors office , she said her doctor will call me back when she gets in the office around 9:30. So, we'll see.

 

Dave & Kelly
Daughter 7
Diagnosed at 15months with UC (pancolitis) then  Selective IgM defiency
Took many medications, no relief,GI wanted to start her on Imuran.
Took her to a natural doctor. He did a detox on her body.
Going to the restroom 15 times a day, developed pneumonia,recieved shots of Rocephin (wide sprectrum antibioitic) within24 hours of Rocephin bowels were formed.Going on Eight months without any medications and she is doing great She takes Forvia multi vitamin ,Natures Way Primadophilus Reuteri, Viactiv calcium chew, fiber chews daily
 
 
 
 
 
 
 
 
 

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