Even in full remission I sometimes have this. I don't know the reason for it, but I suspect maybe the muscles of the rectum and anus have been stretched and maybe sensitized to pressure. I'm sure there's also some degree of mental component to it, because most of us have lived in terror of having an accident for too long, and it's hard to lose that. I'll still wake up in the middle of the night an hour before I have to go to the bathroom. It's like when the stool hits some point in my left colon, my brain automatically wakes me up.
Left-sided UC diagnosed 2001. Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years!
Now in remission for almost two years. Remicade has been my wonder drug.
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."