Hey all, sorry to chime in here so late in the game; but I've been on Remi for over two years now, and all is well -- matter of fact, I have one tomorrow. I'm on the fast track (you can do this after a certain amount of infusions, they just have to make sure there is no reaction) and it takes me about
1-1/2 hours to be infused. They usually put in the IV, give me a warm blanket, and I'm sleeping for most of the time. I bring a magazine with me, but most of the time I just sleep. I try to schedule them for mid-afternoon, and then just go home afterwards. I really haven't had any problems whatsoever. The day after one particular infusion, I flew all the way to the east coast; another infusion....the next day I flew to Europe. I thank heavens for this med, and I'm so glad my doc put me on it. I was sicker than a dog wondering what I'd do because I had a full time job and up for a promotion, a house to take care of, and hey, just the busy stuff. I have an incredible GI, and I told him that my lifestyle was horrible and I was mad because I couldn't exercise like I had been, etc., and he decided to put me on Remi before it was even approved by the FDA for UC. But this is my story; I can't say the same for everyone. Good luck to you on your decision. Oh, and about
the sore back and cramping; yep, it's the UC. Sometimes I get that (not often) just because and I kick back and let my body rest up. Take care, and if you have any other questions, please feel free to email me or post again.
Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics
"Life is short -- make fun of it"
Co-Moderator for the UC Forum