So sorry to hear the asacol was so harsh on your son. Asacol, dipentum and colazol have all made my UC much, much worse, and I find it hard to believe the adverse effects are as low as reported on the patient info. sheets, but of course many do seem to tolerate them well. The only one of the mainstay 5ASA's I haven't tried is lialda, but I believe that is essentially asacol with a different coating.... so I am terrified to try one and go through what I have gone through with the toehrs (searing pain, bleeding and D).
Your son can take heart that one can enter long, multi-year (for some even multi-decade) remissions even after one or mroe severe initial attacks- this crazy illness seems to have little rhyme or reason sometimes. Seek out all the information on both conventional and alternative treatments with an
open mind, gradually so as not to be overwhelmed. This is a good forum esp. on conventiional treatments.
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 mg pred, 100 mg Imuran
Probiotics (mainly Primal Defense)
Turmeric/circumin, various vitamins/minerals,
Low-carb version of Specific Carb Diet