Thanks Heather...what a difference a year can make. Last year travel days to and from were not nice and that was before all hell broke loose in March and April of this year. He could have never traveled if we had anything planned during March thru June of this year. (Just getting to a Dr appt was a mojor event during those 4 months!!!)
We are so grateful that a normalcy of some sort has returned. It is not the best, however when you have been at rock bottom and you can function even with some distractions you certainly appreciate life more and more.
We go back to the Mayo Clinic on the 19th of Nov for some more follow up stuff - I hope we can dovetail their care with our local GI here as the drive is a minimum of 5 hrs round trip. Hopefully we will get it to one or two visits per year which will be a lot more manageable.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran 15 mg prednisone & tapering, 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enemas AM & PM, folic acid 1mg, Fosamax 1x month