Hmm, good thread. I have had 3 Remicade infusions and so far it is rather disappointing to say the least- seems to kick in gradually after a few days and then lasts only for a couple weeks. So it helps, but only weakly, and I can't get below around 12.5 mg of pred it seems without reflaring. I'm also keen to see if Humira is a viable option of remicade becomes a failure. Probably I should try a double dose of remicade first, if my GI lets me. Like others posting here I am also close to thinking to heck with this insanity and just pursue surgery. But I'd at least like to know if maybe double Remi or Humira (if my insurance will allow it) might finally do the trick. I am going to try home brewed fecal infusions too, before resorting to surgery. Just started TSO again to see if maybe it assists the Remicade.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred,
100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO,
boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie