Are you consulting with colorectal surgeons? If you have met with 4 surgeons who don't recommend a j-pouch then I would not attempt to have surgery with any of them. The j-pouch is considered the gold standard surgery for those wanting to get rid of their colon due to UC. Patient satisfaction rate is 95%. I am surprised that you haven't found a surgeon in support of it, that's about the only surgery that new CR surgeons are being taught. It is fairly common to find a good well trained CR surgeon in any metropolitan area.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free