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dentinn

Regular Member

Joined : Mar 2007

Posts : 41

Posted 10/29/2007 8:45 PM (GMT -7)

Hey guys,

Well just an update for you all. Last time I posted, my symptoms came back slowly but surely, bleeding a mucus in my stool. 2 weeks ago I started my meds again Sulfasalazine 4 500mg per day, Annucort suppositories 2X per day, and Rowasa 2X per day. Within a week of being on those meds the bleeding and mucus completely stopped once again. So while yes I am happy, I am still getting a second opinion from a different GI. I scheduled my apt for next month, and all of my records are being transferred to this new doc. So I'm thinking to myself am I going to have to be on these medications for the rest of my life? So anyways just wanted to share. Take care.

March of 07 ds mild chronic proctitis

-Rowasa/Sulfasalzine/hydrocortisone supossitories twice daily... did put into remission then I stopped and now it's coming back : ( 10/1/07

-Zoloft 100 mg

-Xanax .5mg as needed

Non Rx: -Centrum multi-vitamin

-Chromium piclonate -Vitamin C-Calcium-B-12

Red_34

Forum Moderator

Joined : Apr 2004

Posts : 23575

Posted 10/30/2007 5:11 AM (GMT -7)

Thanks for letting us know how you're doing Dentinn. I'm glad that you are starting to feel better. Unfortunately many of us have to stay on our meds for life (me included) and yes it takes much getting used to but after so many years it becomes second nature. I still resent having to take so many gosh darn pills but I have to pat myself on the back because I'm not in denial anymore and take them religiously.

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia, Pro-Bio}

^{Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE}

^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@}

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birdiem

Regular Member

Joined : Aug 2007

Posts : 326

Posted 10/30/2007 5:24 AM (GMT -7)

ugh, i know--i have to take like 9 million piils (i should update my signature after this last hospital visit) but (and i know this is silly) it helps me to think of them (the 9 million ones i take in the morning) as personalized "katie" vitamins. like ok, here is the multivitamin for normal people and then here are special "katie" vitamins. i know it sounds very sesame street and something i would use on the kids i babysit for, but it makes me laugh before taking them...and i guess that is all that matters.

katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine

birdiem

Regular Member

Joined : Aug 2007

Posts : 326

Posted 10/30/2007 5:27 AM (GMT -7)

sorry to post again, and i don't mean to be moralizing (believe me, i don't judge on this stuff) but i noticed you are on xanax. just a word to the wise...i started taking it "as needed" (i'm on zoloft too) and tapering off of xanax has been TERRIBLE. do what you want, it is just something to keep in mind, that stuff sneaks up on you pretty quickly...

Harpo

Regular Member

Joined : Jul 2007

Posts : 262

Posted 10/30/2007 5:49 AM (GMT -7)

I refuse to say that I have to be dependent on drugs for the "rest of my life" as new treatments and breakthroughs are always coming up.. It's very grim and disheartening to hear people say that..

Male 36yrs old. Indeterminate Colitis 6 yrs.

Pro-bio

Protonix
multi vitamin

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