I'm a new member and am having a difficult time mentally right now. I am hoping some of you may had similar experiences and can share them with me.
UC since April 2006. First flare May 2007 (hospital for 28 days; close to having surgery). Things brought under control with one Remicade infusion, but got MRSA infection from the PICC line. BM's dropped from >20 to 1-3 per day. I was not able to get the second and third doses on time because of the MRSA. Tried second Remicade 15 weeks later, but had a severe rxn even after pretreatment with tylenol and benadryl. GI says no more Remicade. Currently taking prednisone (20mg, down from 40mg last month).
At 20, I'm now seeing bright red blood in stool and on TP. Stool is now loose versus soft and formed at higher pred dose. Still only 1-3 BMs per day. Doctor wants to wait and see another week. If no changes, he wants to do a colonoscopy to see what's going on. Could be hemmorhoids, but he cannot rule out active disease.
I can physically handle the 1-3 BMs per day. Anything is better then 20! My problem is mentally. Every time I have a change in BM, all I can think about is I'm having another flare and will end up in the hospital again. Also, I am having a difficult time not letting UC be my life. I think about it all the time, especially in the car commuting to work. I sometimes wonder if I should just have my colon removed and be done with it. My wife is extremely supportive and tries to lift my spirits all the time. Will I ever be like the person I was before UC?
calcium 2x per day
digestive advantage crohn's&colitis (1tablet per day)