I am so sorry that you have suffered for so long and been misdiagnosed. I agree w/all the sentiments, here. Also, do as much research as you can and push your doctors! I wish you all the best and this place has been wonderful for me, especially knowing you are not alone and a great place to ask questions and get advice.
I hope you are able to get some relief very soon!
All my best,
UC Diagnosed March 2000
Azathioprine 100mg 1xday;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.