New To Group Going to Try Rowasa a little nervous

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

here
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 10/31/2007 9:28 PM (GMT -7)   
Hi Everyone.

I have been putting off taking the Rowasa for a week now. Does it leak out when you are in bed? I know I have to stay on my side for a 1/2 hour.

Thanks for any help.

LA

DeniseW
Regular Member


Date Joined Nov 2005
Total Posts : 346
   Posted 10/31/2007 9:32 PM (GMT -7)   
No. Enemas are way scarier to think about than they actually are. I was paranoid to do it the first time. I did the vit e ones all the time, and some of the cortifoam ones, but the rowasa ones were horrible for me. I really think they made me worse. The docs said I couldn't handle the "volume", but I don't think the volume burns and makes you cramp, etc...
dx 4/05 with pancolitis UC after birth of my second child... meds worked randomly
SCD and vit e enema remission for 18 months and had another drug free baby 10/06
Let flare get out of control and even steroids wouldn't work 7/07 - docs wanted surgery
lialda x4 daily and started remicade 10/26/07
 
 


UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 10/31/2007 9:32 PM (GMT -7)   
I've never leaked a drop. It hasn't been any problem for me. I only wished it would spread throughout the colon, instead of just the sigmoid.

DeniseW, are the ones you're talking about the 6g/5ml bottles?


Current Prescriptions:
 
50 mg Prednisone per day, 1 x per day
1000 mg Sulfasalazine, 4x per day
1 Mesalamine Enema per day


here
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 10/31/2007 9:34 PM (GMT -7)   
Thanks so much for your rapid reply~

Have you tried Aruveda and/or Yoga- or should I post this question in another thread?

LA

here
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 10/31/2007 9:46 PM (GMT -7)   
Another question--

should i put a tarp on my bed and does the medication smell?
will it stain my bedding-- like my blankets?
do you take the Rowasa on your bed or in your bathroom?
sorry I am just really nervous.

thanks again-- as for ayurveda and yoga/ natural i see there is a thread on this.

UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 10/31/2007 10:15 PM (GMT -7)   
I don't use anything, but if you're even a little nervous you could sleep with underwear on. It may stain but I've never lost any. Like Diarrehea (sp) if you have urgency you'll know. I've taken it in bed, on the couch, etc.
Current Prescriptions:
 
50 mg Prednisone per day, 1 x per day
1000 mg Sulfasalazine, 4x per day
1 Mesalamine Enema per day


LSUBacchus81
Regular Member


Date Joined Oct 2007
Total Posts : 53
   Posted 11/1/2007 2:27 AM (GMT -7)   
I've also just been prescribed Rowasa a few days ago.  I've been tolerating pretty well, although not really sure if its working but again, this is only my third dose.   I dont have any trouble with it leaking at night, I've been able to retain the medicine until the morning, thats when normally I have to have a BM.   My only concern,  is that Im making a few more trips to the bathroom a day to have BM's since I've started the Rowasa. It seems to be making me have more D, but not for sure if that might just be my flare up..  You may have to adjust your dosage.  My first night I took the whole 60 ml's, and that caused several loose stools. The second night I took only 30 ml's and seemed to have a much better day with not as many loose stools.  Hope this helped. Good Luck!

LSUBacchus81
Regular Member


Date Joined Oct 2007
Total Posts : 53
   Posted 11/1/2007 2:33 AM (GMT -7)   
They also say the best position to be in, is a side-lying position with your right leg over lapping your left leg, and try to retain it for at least 30 mins.   I also just lay a towel down on my bed while Im doing because the medicine does tend to leak out a little while administering it (at least with me it does a little). Try to do it right before bedtime also  so you can keep it in for 8 hours.  I hear that gives the best results. 

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/1/2007 4:12 AM (GMT -7)   
Right, it's best if you can retain it overnight but it has shown to be effective if left in for at least 30 minutes. I have used enemas for nearly 12 years off and on and I have never had any sort of leakage problem. Trying to hold in, yes but never leakage. I have never had a stain on my bedsheets or blankets. But also if you are nervous that it can stain, you can put a sanitary napkin in your underwear or even wear depends at night. When you do decide to use them, be sure to expel all the air out before inserting or it can cause cramping. Also if the bottle is cold you can run it under warm water or roll around in your hand to warm it up. By warming it, it will also help you retain it.

And btw, welcome to Healingwell :)


 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


Knitty_Cat
Regular Member


Date Joined Jun 2006
Total Posts : 105
   Posted 11/1/2007 4:36 AM (GMT -7)   
I've never had any leakage during or after applying it. I have however, shaken the container vigorously without checking the lid was on and got it over the bed and floor!

Seriously, I was nervous the first time I used the enema but was surprised at how easy it was to use. Now I find it a pretty trivial thing to do - more effort than parts of my night time routine such applying my face cream/eye cream but less effort than brushing my teeth. You apply it while laying down in bed (on your left side).
UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) for maintenance, Salofalk enemas and/or Colifoam for flares
Oat bran 60grams daily, Metamuscil and multivitamins


Currently using Colifoam (steroid foam) nightly to clear up a stubborn flare.


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 89
   Posted 11/1/2007 10:37 AM (GMT -7)   
I would work my way up to all night.  Sometimes if you are very raw inside you can't retain it all night at first until the inflammation calms down.  Again, this can't be repeated enough-- make sure you squeeze all the air out of the bottle or it will make you crampy and you can't hold it in.  Unscrew the cap, push the liquid up to the top and screw it back on.  Then squeeze just a smidgen out.  Start out with a half hour, then 45minutes to an hour the next night and so on until you eventually work up to all night--just to see how you react to it.  (They usually give you plenty of bottles).  I personally cannot do all night.  I get really horrible cramps in the morning when I do and I go to the bathroom too many times.  But an hour or so at night works very well for me when I'm in a flare.  I usually lie down on my side and apply it, and watch TV while I'm waiting.  I have never had a leaking problem once it's all in, but do put something down like an old towel on the couch or bed because it might leak just a little when applying because it can stain.  Don't be alarmed if your bowel movements are darker with a whiteish cast to it the next day.

Left sided UC 3 years
Current Meds: Lialda 3 in the Morning
Rowasa when needed or Canasa
Multi Vitamin/Mineral
Fish oil
Biotin


SwollenColon
Regular Member


Date Joined Nov 2006
Total Posts : 190
   Posted 11/1/2007 11:00 AM (GMT -7)   
You guys that are doing half the bottle, do you throw it away, or finish it the next night?

quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 11/1/2007 11:02 AM (GMT -7)   
Hi here..welcome to the forum!

The more you worry about it....the worse can be. Just make sure you're not doing anything or moving about after you've inserted the medication. Have a garbage bag/can beside your bed so that you don't have to get up to throw it into the garbage. Turn on the TV or read for the half hour after so that you're not totally bored if you can't get to sleep.

Check out the diagram and read the instructions....see which position works best for you. You might find using KY on the tip before inserting will be easier.

Once you start using them, you'll change your technique a bit to suit you.

You will have the urge to expell it....just lie still and white-knuckle through it...do panting, squealing, grunting, groaning...whatever it'll take for you to hold it in.

In the 19 years, there were 3 times I couldn't hold it for the entire night, once I had to run to the toilet to expel about 3 minutes after doing it.

Let us know how you make out.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


DeniseW
Regular Member


Date Joined Nov 2005
Total Posts : 346
   Posted 11/1/2007 1:06 PM (GMT -7)   
Wow quincy, that sounds horrible. That's why I did it once and will never do those again. Never had that problem with the vit e, so I know it was the meds. Especially since I almost always had air in the bottle with the vit e (since I tried to make sure I got it all out).

UC Fighter, I had the 4g/60ml ones.
dx 4/05 with pancolitis UC after birth of my second child... meds worked randomly
SCD and vit e enema remission for 18 months and had another drug free baby 10/06
Let flare get out of control and even steroids wouldn't work 7/07 - docs wanted surgery
lialda x4 daily and started remicade 10/26/07
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 11/1/2007 4:07 PM (GMT -7)   
I agree with Quincy: it can be hard to retain at 1st, but do your best to hold it in overnight-- to increase your chances for healing of the inflamed tissue. Rowasa does stain orange if it spills on bedding, etc. Also, it can take up to 3 months of nightly use to bring about remission. One has to be patient while using it because it does not work as fast as the steroid retention enemas. It also liquifies the bms whereas the steroid enemas make things nice 'n' dry-- like your colon could whistle. But remember, the doctor prescribes Rowasa because it has far fewer side effects long-term than steroid meds. / Old Hat (nearly 30 yrs with left-sided UC;currently on 3 Colazal daily;seem to be back in remission)

here
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 11/1/2007 6:16 PM (GMT -7)   
thanks everyone. well, it was not such a big deal. when i put it in it seemed to leak a little but i just laid there for a half hour and it seemed to stay inside. i did not have cramping. i am confused as to how the Rowasa is to help. today i had a full bm and a little blood but on the stool, not the tissue. i really want to do ayruveda, yoga, and vitamins, honestly cannot imaging having to do this forever. also wondering what a remission means. thanks.

UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 11/1/2007 11:18 PM (GMT -7)   
It takes some time for the effects to be fully realized. How much time is a good question.
I have to admit that during one insertion I forgot to take the cap off. darn medicine wouldn't come out. I felt so dumb.

;)
Current Prescriptions:
 
50 mg Prednisone per day, 1 x per day
1000 mg Sulfasalazine, 4x per day
1 Mesalamine Enema per day


Knitty_Cat
Regular Member


Date Joined Jun 2006
Total Posts : 105
   Posted 11/2/2007 1:12 AM (GMT -7)   
UC Fighter - I've done that too! I was saying to myself "this enema must be blocked or something" and when I (eventually) took it out to look at it, the cap was on. D'oh! I'd also noticed that it felt larger than usual going in so I felt doubly dumb!

Here - it does take a little while to work. A bit of patience is required with the Rowasa but a lot of us here think it is well worth the effort. Give it some time.
UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) for maintenance, Salofalk enemas and/or Colifoam for flares
Oat bran 60grams daily, Metamuscil and multivitamins


Currently using Colifoam (steroid foam) nightly to clear up a stubborn flare.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 11/2/2007 1:45 AM (GMT -7)   
here....at least give the meds a fair chance. It's your decision ultimately.

You should do the research to understand how they work.

Remissions means absence of symptoms...such as being "normal" for an extended period of time. Of course, past normal and present normal and future normal are subjective.

You have a disease that is life-long. It waxes and wanes. Meds given are usually the doctor's choice...patient do have the right to not use them.

One can definitely incorporate any supportive therapies of exercise, meditation, supplements..etc as to his or own choosing. Research should be done as to what the side effects and what the contraindications are.

We all go through a phase of denial.....acceptance......understanding.

Keep us posted.
quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 11/2/2007 1:46 AM (GMT -7)   
Denise...what's horrible? I didn't say I go through that all the time...I did when I started using them. It's great you're having success with your choice of treatment.


LOL UC Fighter!!!

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 9:37 PM (GMT -7)
There are a total of 2,906,349 posts in 318,946 threads.
View Active Threads


Who's Online
This forum has 158283 registered members. Please welcome our newest member, Coe-Coe.
277 Guest(s), 3 Registered Member(s) are currently online.  Details
Worriedsicked, U B Tough, mareish