Remicade - how soon did you start getting better?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MagiMae
New Member


Date Joined Mar 2007
Total Posts : 16
   Posted 11/1/2007 10:18 AM (GMT -7)   
I will be starting remicade next week and would like to know if anyone can remember how soon they started seeing a difference in their symptoms.  How long did it take you to start feeling better?
 
Thanks to all!
 
 
36 year old - UC December 2006

Prednisone

Imuran – 50mg 2x daily

Asacol – 2 x 3 daily

 

16 year old daughter diagnosed w/Crohns 30 days later.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 11/1/2007 10:53 AM (GMT -7)   
Hi MagiMae, and welcome to HealingWell! I've been on Remi for over two years now, and I was really lucky in that the Remi worked almost overnight for me. With other folks it has taken a bit longer, sometimes weeks, or even several infusions to feel better. Everyone is so different that it's hard to say what will work and how long it might take to work for you. I will say that it's been heaven sent for me, and I'm happy I made the decision to go the Remi route. Good luck to you with your infusion; should you have any questions, don't hesitate to ask! :-) Again, welcome!

Carol

Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 11/1/2007 11:18 AM (GMT -7)   
I think it took me 1-2 infusions

Sam

18 years old

Diganosed in Sept 2004
Currently taking 12 asacol, immodium occasionally, 25mg Elavil and Ortho Lo

Remission since April 2006

"If you dont like something, change it. If you can't change it, change your attitude"

Maya Angelou


gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 11/1/2007 11:24 AM (GMT -7)   
i felt better within a week.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/1/2007 12:01 PM (GMT -7)   
I felt great within a few days of my first two infusions, but the last one didn't "kick in" as well as the previous ones. My GI thinks it is because I am also under a great deal of personal stress right now. I have seen some improvement since the last one, so I am glad for that at least.

I was nervous about the whole process, but it is really very straight forward and painless. Where I go there's a TV, they started providing iPods if you ask for one, but I have my own Zune. I usually just bring a book. It takes 2-3 hours for the infusion. Last time I had to schedule it early in the morning and I just slept through it.

Meesh
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07; 3rd infusion 10/13/07
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alternating 5/0 mg; Xanax; Lexipro, Rowesa; Asacol; Colazal three 750 mg capsules 3X day;
[2/22/07 started Imuran, off within two weeks due to bad reaction]


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/1/2007 3:54 PM (GMT 0)   
After my second infusion, I thought I felt better, but it wasn't dramatic enough to be sure it wasn't just "wishful thinking." After the third one, I saw a definite decrease in my symptoms and increase in my energy. It continued to slowly but steadily get better for about the first 9 months, then stabilized.
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 4:23 PM (GMT -7)
There are a total of 2,904,140 posts in 318,725 threads.
View Active Threads


Who's Online
This forum has 158122 registered members. Please welcome our newest member, hollyylouissee.
326 Guest(s), 11 Registered Member(s) are currently online.  Details
cupcakespinkgal, oldbeek, moosie, Michael_T, mtnwife, OptimisTick, Rickk90, Mark FW, Mergirl, Evanston1, Tim Tam