Remicade - how soon did you start getting better?

MagiMae

New Member

Joined : Mar 2007

Posts : 16

Posted 11/1/2007 12:18 PM (GMT -6)

I will be starting remicade next week and would like to know if anyone can remember how soon they started seeing a difference in their symptoms. How long did it take you to start feeling better?

Thanks to all!

36 year old - UC December 2006

~~Prednisone~~

Imuran – 50mg 2x daily

Asacol – 2 x 3 daily

16 year old daughter diagnosed w/Crohns 30 days later.

Lonie

Veteran Member

Joined : Feb 2005

Posts : 6448

Posted 11/1/2007 12:53 PM (GMT -6)

Hi MagiMae, and welcome to HealingWell! I've been on Remi for over two years now, and I was really lucky in that the Remi worked almost overnight for me. With other folks it has taken a bit longer, sometimes weeks, or even several infusions to feel better. Everyone is so different that it's hard to say what will work and how long it might take to work for you. I will say that it's been heaven sent for me, and I'm happy I made the decision to go the Remi route. Good luck to you with your infusion; should you have any questions, don't hesitate to ask!

Again, welcome!

Carol

Remicade - will have my 19th infusion on November 1.

Imuran - 100 mgs....taken before bedtime

Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"

Co-Moderator for the UC Forum

basa0806

Veteran Member

Joined : Feb 2005

Posts : 2103

Posted 11/1/2007 1:18 PM (GMT -6)

I think it took me 1-2 infusions

Sam

18 years old

Diganosed in Sept 2004
Currently taking 12 asacol, immodium occasionally, 25mg Elavil and Ortho Lo

Remission since April 2006

"If you dont like something, change it. If you can't change it, change your attitude"

Maya Angelou

gela

Regular Member

Joined : Jun 2005

Posts : 133

Posted 11/1/2007 1:24 PM (GMT -6)

i felt better within a week.

Diagnosed in 1999, hospitalized once. Not responsive to meds. Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC. Also have migraines and take B-4, B-2, for the prevention of them.

Deciding whether or not to have surgery at this time.

Meesh

Veteran Member

Joined : May 2006

Posts : 619

Posted 11/1/2007 2:01 PM (GMT -6)

I felt great within a few days of my first two infusions, but the last one didn't "kick in" as well as the previous ones. My GI thinks it is because I am also under a great deal of personal stress right now. I have seen some improvement since the last one, so I am glad for that at least.

I was nervous about the whole process, but it is really very straight forward and painless. Where I go there's a TV, they started providing iPods if you ask for one, but I have my own Zune. I usually just bring a book. It takes 2-3 hours for the infusion. Last time I had to schedule it early in the morning and I just slept through it.

Meesh

Diagnosed UC April 27, 2006

Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07; 3rd infusion 10/13/07

Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alternating 5/0 mg; Xanax; Lexipro, ~~Rowesa;~~ ~~Asacol; Colazal three 750 mg capsules 3X day~~;

[2/22/07 started Imuran, off within two weeks due to bad reaction]

jujub

Elite Member

Joined : Mar 2003

Posts : 10407

Posted 11/1/2007 5:54 PM (GMT -6)

After my second infusion, I thought I felt better, but it wasn't dramatic enough to be sure it wasn't just "wishful thinking." After the third one, I saw a definite decrease in my symptoms and increase in my energy. It continued to slowly but steadily get better for about the first 9 months, then stabilized.

Judy

Left-sided UC diagnosed 2001. Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years!

Now in remission for almost two years. Remicade has been my wonder drug.

"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."

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