|Sorry for being vague... I'm 37 years old and I'm very new to all the lingo and am not sure what/how to write it all down, and how to gather my thoughts.
I was first diagnosed with UC in 03 during my last healthy pregnancy. (Hayden was born healthy August 21) That is when I was actually diagnosed but I have always had issues, i can even remember as a child, nervous stomach, diarrhea always needing to go. So since 03 I have taken many drugs (too many for my liking-I don't like to take anything especially if it doesn't help! And nothing was!) Prednisone,Asacol, Rowasa enemas, Remicade and as things progressed I tried other alternitives, the natural approach Flax,Proteolytic enzymes, Acidophilis L-Glutamine. I tried changing my eating habits, drinking more water, drinking less water, excercising, All the while feeling more and more out of control.
Since Hayden's birth, I have had two unhealthy pregnancies. Jeb was born too early at 18 weeks gestation Nov. 22 2005 and then Mattew, born 20 weeks gestation Feb. 21 2007. I also have two other healthy children; Steven is almost 10 and Ava is 5. Both are/were healthy pregnancies and babies, now children.
As far as how things are for me, much like I have been reading on all of your chats, miserable! I am just so tired of having being afraid of leaving the house. So many times I just find ways/excuses to stay home. That's the only place I feel comfortable. I do try to live a regular life, for my children and my husband, but all the while I'm thinking where is the bathroom and do I have everything I need to clean-up with? I have had accidents in every place imaginable. I just can't control myself what so ever. I am most humilated when I have to have my children hide their eyes while I clean myself up. I don't think I'm alone in what I'm saying! Actually, reading through all of your messages/chats let's me know that I'm not alone. I hate to talk to my husband (he always listens when i break down, and i know he does his best to be supportive but it doesn't leave you with the most romantic feelings I suppose...) It even affects our sex life!
Like I said before i don't like to take meds, but I have always tried and followed what my GI told me to do. And I was even thinking foolishly, that I could handle it myself and trick my body into behaving, I've been humbled into submision. Surgery is my next step. I don't even know what/when/how. I've been reading and trying to understand the types, and what is expected. My GI Dr. has refered me to a Surgeon at the Cleveland Clinic, we meet this Wed. One question that my GI always asks is are you experiencing diarrhea? I have it every day all day long all the time! It's never anything other than a loose uncontrollable mess. I'm never constapated until two weeks ago......
I have not had difficult pain other than cramps and feeling somewhat uncomfortable but this paticular day I was doubled over in pain. I lost my appitite and didn't eat for a week and bleed throughout that week. My GI was out of town and i was told to go to the ER but I just held out until he was back and went to him. He put me on an antibiotic and back on Asacol. The pain was different for me and to be constpated for 8 hours was very difficult. Usually I go to the bathroom 15 plus times a day. I never feel full, always going approx. 5 to 10 min after I eat. And now since I had this last episode I have had pain after I eat. I'm tired all the time ( I always chalked it up to pregnancies/having kids). But it hasn't let up. My UC has just about consumed me!
I want to get my life back, and to be "normal" not to wear depends, isn't funny, I prefer the Poise. My Hayden pulled one out of my purse one day and announced to everyone within earshot that "My mommy wears pull-ups!" I just smiled with pride!
So, I'm off to the Surgeon to get some answers and to see if this is for me. After I've spent some time reading thorough all of your thoughts I'm hoping it is for me. I'm tough, i expect pain, as long as i get to "normal!!!!
And I/we would like to try again at another baby. (We haven't discovered why we lost the babies? Does anyone know ANYTHING about if there is a connection? All I know is I should be remission when we conceive.)
Any/all thougts would be apperciated!