Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Need advice and help with bad flare up

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
reign
New Member
Joined : Nov 2007
Posts : 5
Posted 11/5/2007 2:31 AM (GMT -8)
Hi All,

Im new to the Forum and i was hoping i could get some advice and help from fellow UC sufferers. Im 21 and was diagnosed with UC when i was 15. I have had the usual ups and downs and typical flair ups.

At the moment im going through a very bad flair up, probably the worst i have had and im not sure what to do. My medication i was on was mercaptopurine, which i found was not helping so once i ran out i stopped taking them which probably was not a good idea. I had a 4 weeks dose of Salofalk enemas which did not help either. So i left it and was not on any medication.

At the moment i have put myself back on the prednisone to try and help, which is not having a great effect either. My specialist i normally see is away and i not available till january, i do not have a GP as i normally just see the specialist. I dont want to just go to any old GP and get told something i already know but i dont know what else to do.

This is by far the worst flare up i have had and im starting to get really worried as its not getting any better.

Any advice or help would be greatly appreciated

Thanks!

profile picture
LondonRed
Veteran Member
Joined : Oct 2007
Posts : 1258
Posted 11/5/2007 3:16 AM (GMT -8)
You need go to an Accident and Emergency centre where your normal specialist is based or your local hospital where a GI will come and see you immediately they realise you have UC. You never know, a new person may even be a breath of fresh air.
profile picture
Beth75
Veteran Member
Joined : Jul 2007
Posts : 2158
Posted 11/5/2007 6:24 AM (GMT -8)
Don't wait until January, make an appt asap and find a good GI to help get you on some correct meds to get relief. My UC was recently out of control and I don't want you to have to go through that, myself and my Doc's agreed on a decision and I believe it was not the best course of action but then they quickly went into action to help get me some relief and we are working on a plan to get me healthy and keep me that way.
profile picture
jmhulstrom
New Member
Joined : Jul 2006
Posts : 3
Posted 11/5/2007 5:06 PM (GMT -8)

Hi there,

sorry to hear you're having such a bad flare..........the only thing i can tell you is that in my experience sometimes the prednisone takes time to kick in....as long as two weeks for me...and that was at a dose of 40mgs per day.  Fortunatley though it has always worked and is the only drug that puts me into remission. 

Also, when i'm experiencing a flare i really watch what i eat.  i've found that a high amount of soluble fiber foods can be helpful, (almost theraputic). 

profile picture
tjf
Veteran Member
Joined : Dec 2005
Posts : 3238
Posted 11/5/2007 5:26 PM (GMT -8)
Hey and Welcome! I definitely think you need to calll the doctor's office and ask to see someone else. Jan is way too long to wait. I know I stopped my meds cold turkey one time and it sent me into a flare. Let us know when you can get an appt.
profile picture
reign
New Member
Joined : Nov 2007
Posts : 5
Posted 11/5/2007 11:15 PM (GMT -8)

Well im currently on 50mgs of prednisolone a day, which is what my specialist normally puts me on at the start of a dose.

I have made an appointment with a local GP today and am going on thursday so fingers crossed he can help me get this flare under control.

profile picture
sdaless
Veteran Member
Joined : Jun 2005
Posts : 1396
Posted 11/6/2007 1:35 PM (GMT -8)
If you feel as if you are getting worse you should go to the emergency room and preferably the one associated with your current GI as someone mentioned above. He should have a back up doctor working for him. I wouldn't play with this. Good luck.

Stacy
profile picture
reign
New Member
Joined : Nov 2007
Posts : 5
Posted 11/6/2007 1:50 PM (GMT -8)

My normal specialist who is away practises out of a small office near the hospital and only goes to the hospital for procedures. He has nobody filling in for him while he is away.

Ive got an appointment with a good GP so hopefully she will be able to help. Ive thought about taking myself to the emergency but i thought that was a bit drastic.

Thankyou all for you advice and help

profile picture
reign
New Member
Joined : Nov 2007
Posts : 5
Posted 11/6/2007 3:36 PM (GMT -8)

Are there any specific foods that people definately cannot eat due to UC??

profile picture
Bmshurt
Regular Member
Joined : Oct 2007
Posts : 28
Posted 11/7/2007 9:32 AM (GMT -8)

reign said...

Are there any specific foods that people definately cannot eat due to UC??


       Well from what i have read and been told, during a flare up Dairy, Fried Foods and Processed Foods are the big no no. During my last flare up (big one) i spent 4 days in the hospital, got put back on Pred and dropped Asacol and GI switched me to Imuran. My diet during the flare up was lots of water, apples, plums, Ensure in the morning, and sometimes was able to get down some soup. Towards the end of the flare up i was able to eat soy yogurt, fruits, veggies, soups, chicken, crackers. When got back to remission recently i encountered a really wide range of food cravings. Unfortunetly these cravings a for not so healthy food. I gave in on some of those and boy did i pay the stomach cramping pain price. Im trying to retain a lean meat and veggie diet but come on, its so extremely difficult to give up a big juicy Cheeseburger or a grilled to perfection T-Bone/Ribeye and my ultimate favorite Pizza.
✚ New Topic ✚ Reply


More On Ulcerative Colitis

7 Lifestyle Changes a Patient with Ulcerative Colitis Should Make to Help Combat the Condition

7 Lifestyle Changes a Patient with Ulcerative Colitis Should Make to Help Combat the Condition

7 Ways To Support Someone With Crohn's Or Colitis

7 Ways To Support Someone With Crohn's Or Colitis


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.