Posted 11/5/2007 10:07 PM (GMT -7)
Ok, I have two sorta related questions...
1) When do you flare? I had been doing it all day and now it's only at night (since I did that one remicade). VERY irritating. I will go all day with nothing, and then about midnight when I go to bed I have to sit there for at least 45 min waiting for it all to pass. At some point between about 11pm and 2am I go in there and feel like I'm going to push my whole colon out, no surgery needed. Then for the rest of the night until about 8am (or whenever I get up and start walking around, that's when it stops) I have to go whenever something even slightly wakes me up. And with kids, a dog, and a husband who snores...well, that's pretty much about 20 times a night. It used to be when I got up out of bed to tend the baby, but otherwise I was fine. Now I just have to wake up a bit and I need to go. Usually just gas, but none-the-less, still have to go. Does anyone else do this? Is this a hormonal thing or something? I don't get it.
2) Some of you say things like chocolate is a no-no...pizza...etc. How do you know? I can eat just about anything and every once in a while it'll hit me 30 min later or something (spicy tomato stuff usually). Most of the time though it takes hours, or nothing at all until my above mentioned nightly battle. If I don't have anything but my nightly battle, how would I know a food is bothering me without doing a total elimination? I don't know how I did scd for 2 years completely strict. I really have no willpower now that I'm doing the remicade and am not going to restrict myself since I'm on the "big" drugs now.
dx 4/05 with pancolitis UC after birth of my second child... meds worked randomly
SCD and vit e enema remission for 18 months and had another drug free baby 10/06
Let flare get out of control and even steroids wouldn't work 7/07 - docs wanted surgery
lialda x4 daily and started remicade 10/26/07