Posted 11/7/2007 11:08 AM (GMT -7)
Thanks for asking, glad to be doing better, it was a truly horrible flare!
I meet w/the Nephrologist on 11/09 to go over my progress. I was originally losing 4.7g protein a day as of 09/07 and as of 10/05 was losing 3.2g a day and I am hoping I am doing better, I hope I am am losing less proteins and can taper the pred to a lower dose. It's hard to wait month to month to find out how I am doing. I nearly had a pred flip out today, when I thought the lab screwed up my results and I would have to change my Dr. appt, luckily it is all squared away (I hope) and I did not flip out = )
The weird thing w/the pred for me is I haven't gotten the surge of energy that everyone seems to get, I wonder if it was because I was so sick and my body is still healing.
How are you doing??
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 1xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.