Hi..I see you're only on rectal meds....if you want to give the best opportunity for the stats to be true..you should also be on an oral 5ASA (if you have no problem taking them)....I would suggest Asacol.
We all don't have symptoms that can alert
us to inflammation spreading, that could be one reason that it does and is a surprise....the other is neglect from doctors who can tend to do more assuming than looking beyond.
I believe that one of the reasons that UC will spread is that if the cecum is involved as well as the rectum and not inbetween. That's one form that seems to not get as much care as it should..because some docs do only diagnosis by sig-scope rather than c-scope. That form could also be why some have rectal inflammation that's difficult to control when treated with only rectal meds.
The likelihood of that type spreading is higher than with just limited to the rectum I would think because of the neglect med-wise.
I believe that if you have both ends of the inflammation covered....oral from above, rectal from below...you give yourself the best chance of keeping it confined.
Now, if you have CD....that won't hold true, for it can pop up in separate areas.
Ask your doc to put you on Asacol to start at least....a low dosage of at least 4 daily. I would suggest the 5ASA enemas rather than the canasa....for I don't consider Canasa a treatment at all. It's good for an addition or help in tapering or for maintenance.
My take on it.
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!