Remicade dosing protocol?

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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/7/2007 4:55 PM (GMT -7)   
Hi everyone- I haven't posted in a bit, but here it is- my surgery was scheduled for next Wednesday, & 3 1/2 weeks ago I had a double dose of Remicade to try to stabilize me. I have been very ill... anyway, I had been getting Remicade infusions at the normal dose, 5mgs/per kg. So we upped the dose to 10mgs/kg, which has helped TREMENDOUSLY. In fact, I am so stable that I postponed the surgery indefinitely! Yay!!!!! I have another double dose infusion scheduled for December 3rd, which will be 7 weeks after the last one. If I start to become syptomatic, I plan to move it up to an earlier date. I've been told you can do the double dose as frequently as every 4 weeks. For the Remicade users out there, what dose are you getting, the 5mg/kg or 10mgs/kg? And how often are you getting infused? I'm wondering how long you can go on an large dose, 10mgs/kg every 4 weeks if need be, before other heatlh issues may arise. This will be my 6th infusion coming up, & I plan to continue on the Remicade as long as it helps. I have heard that some people need 6+ doses before they are put into remission- the first 3 doses worked wonders, then it suddenly stopped working. I did develop a major infection, strep pneumonia, & wound up in the hospital for a week, during which time they stopped my Imuran. I think that's when I started to develop antibodies to the Remicade. I'm hoping a few more double dose infusions will do the trick. Any info would be great! Thanks!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 25mgs/day
 


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 11/8/2007 6:45 AM (GMT -7)   
Eva Lou, I can't really help you out but I just wanted to let you know I'm glad you are feeling better. I think I just get the normal dose every eight weeks. Good luck!

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade remission


poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 11/8/2007 7:24 AM (GMT -7)   
I get the 5 mg every 8 weeks.  That dosage was even upped from 4mg that I was getting previously.  I saw tremendous results with the remicade, unfortunatly developed drug induced lupus, so I will be stoppping it.  goodluck!
~*~Kristyn~*~
Age - 24
Diagnosed w/UC at age 18
Fibromyalgia & Chronic Fatigue at age 16
Acid Reflux & Drug Induced Lupus 10/07 (from Remicade)
Current Meds - Asacol (12 pills daily)
-Nexium 40mg/day
-Canasa suppository (1000mg at bedtime)
-Lexapro (10mg)
-Prednisone (40mg when flaring)
-Multivitamin, Aloe Vera Gel


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/8/2007 7:47 AM (GMT -7)   
thanks for the replies! I know that Remicade dosing is a tricky thing.... and to be honest, if it continues to help the way it's been, I don't care if I'm getting a triple dose! So far, it's been the most helpful drug I've been on. I've got my fingers crossed that it continues the way it's been... for all of us on here who have gotten relief too! From anything!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 25mgs/day
 

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