Hi..welcome to the forum. How awful for all you're going through. I can relate only to a small portion, but I did go through a phase where I was checked for IC. It was all a pretty rough go. The urologist did state that is a connection with UC (which I had before I saw him)...he didn't say how. After the bladder scope, it was confirmed I didn't have it. Actually my bladder problems ended after the scope.
Is your IC ulcerative or non-ulcerative?
Have you been tested for parasites, bacterial or viral infections?
Did your doctors ever mention ischemic colitis?
Have you been tested for Sjogren's or Lupus?
Have you had liver enzyme tests done?
Do you have all your test results?
Out of curiosity...what is your diet like? I don't believe diet is a cause for any of your problems, but I know that some foods can cause symptoms that can overtax the body if it's sensitive or averse to it.
Have you been able to specify what you're allergic to?
What has the treatment options been for you regarding hemorrhoids? Have you been put on any steroid rectal meds to try?
Have you considered any alternate perspectives...not necessarily treatments...but perspectives.
I found three interesting sites...
There's a med called dicyclomine (Bentyl/Bentylol) that might help with some of the spasming/cramping/urgency of both colon and bladder issues...
Sorry for all the questions....I sure hope you're able to get some answers....your optimism is a good thing.
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Post Edited (quincy) : 11/8/2007 2:07:39 AM (GMT-7)