Rowasa Temporarily Unavailable w/no release date from Manufacturer

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Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/7/2007 5:38 PM (GMT -7)   
mad   mad mad    My pharmacy just called and there is NO Rowasa available in SE Michigan and the manufacturer told them it is unavailable and they do not have a release date.  How can they do this?  People need this medication!!!! I am really really ticked right now and need this med.  The generic isn't working and I'm afraid that if I wait any longer this mini-flare is going to go into a full flare and I'll end up on Pred. again.  I just can't do that.  I am so upset!
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Remission since May 2007


tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 11/7/2007 5:39 PM (GMT -7)   
Oh no! Can they contact a pharmacy out of the area and have it shipped in? I go to CVS and I can have my prescriptions transferred to any CVS. Keep us posted.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 11/7/2007 5:51 PM (GMT -7)   
Oh wow! That's awful! I think Tab's idea is good - can they check out of state with an affilliated (sp?) pharmacy?
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/7/2007 5:53 PM (GMT -7)   
He called all the Rite Aid Pharm and no one has it. I am so upset. I might call Walgreens to see if they have any in stock.

Thanks! And, I cannot find anything online about them stopping production and I went to Solvay's website and I can't even find Rowasa on it. Did they stop production all together? I know back in 1999 they had a recall, but that is all I could find. I feel like I am totally screwed.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Remission since May 2007


MitzMN
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Date Joined Feb 2007
Total Posts : 622
   Posted 11/7/2007 5:54 PM (GMT -7)   
I would call all the local pharmacies, and if you still can't find any, call the nearest big city and see if you can find some.

I'll keep my fingers crossed for you, Trixy!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/7/2007 6:08 PM (GMT -7)   
I just called Walgreens and they said Rowasa is no longer being made, but they have the generic.....I am literraly in tears right now. I guess I'll be on the phone with my GI to get an alternative.

Thanks Mitz for the fingercrossing, but it didn't work.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Remission since May 2007


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/7/2007 6:10 PM (GMT -7)   
It happened with my pharmacy a couple yrs ago, too. 1st they told me they could not get any; then when I got kind of hysterical they admitted that it was a warehouse problem. That's likely what your area is experiencing right now. It ended up that they got it back in stock three days later. Rite Aid can be very stupid with their explanations. Try not to panic, but keep after them or else inquire at other pharmacies. If you absolutely cannot get Rowasa for another few days, lube up the generic bottle with extra jelly & use that in the pinch. When this gets resolved, you'll heave a sigh of relief & hopefully have a good laugh, too. What more can we do with the absurd situations this blasted ailment puts us into? / Old Hat

Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/7/2007 6:22 PM (GMT -7)   
Old Hat...you always know what to say to put people at ease. I'm also going to call Solvay tomorrow and find out what the issue is. I can't imagine they just pulled this drug off the market without there being some press aobut it. I can't find anything except for the 1999 recall...and we know they put it back on the market after that b/c that was all I used since 2001. I'm gonna start doing 2 a day...one in the morning and one at night. Thanks again for the kind words.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Remission since May 2007


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 11/7/2007 6:38 PM (GMT -7)   
That sucks you're going through this. Let us know what you find out from the company if you get ahold of them tomorrow. So, you find the brand name version to work better than the generic? I'm just wondering b/c I've never tried the brand name, only the generic.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/7/2007 6:43 PM (GMT -7)   
Sara - the generic has never worked for me, every time I've used it, it never improved my symptoms. When I use Rowasa, I get almost instant relief. It truly is amazing!

I will let you all know what I find out from the drug company tomorow. Not like I don't have anything better to do while at work.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Remission since May 2007


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 11/7/2007 6:47 PM (GMT -7)   
Yeah, I just saw your other thread on the Rowasa vs. generic after I asked you that. Maybe I should try getting Rowasa next time instead of the generic. What was the recall for in 1999?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/7/2007 6:49 PM (GMT -7)   
something about it not being absorbed into the body. They must have fixed that problem...LOL.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Remission since May 2007


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4802
   Posted 11/7/2007 7:25 PM (GMT -7)   
Rite-Aid is merging with Eckerd's maybe that's the reason that they are having problems. I like my locally owned pharmacy so much better than the Mega-pharmacies.

What about some hydrocortisone enemas for the time-being.... I wouldn't think that you would have any side-effects from it if you were only on them for a few weeks.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/8/2007 9:27 AM (GMT -7)   
I called Solvay Pharm today and they said they sold Rowasa Brand to Alaven Pharmaceuticals. I called them, but got a recording. They show Rowasa on their website so I sent them a letter begging for answers. If anyone else is in the same boat as me and NEEDS their Rowasa, please send them an email or call them. Their phone number is 678-589-7000 or email is rowasa@alavenpharm.com.

As soon as I get a response from them, I will let you all know.

Thanks Keith, I may need to resort to those. I have a call into my doctor.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Ending 5 month remission w/mini-flare :-(


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 11/8/2007 11:00 AM (GMT -7)   
That's outrageous!!!!!!!! U.S. pharmaceuticals are shameless! The stuff is available in Canada under name Salofalk-- so I do not understand why the U.S. market cannot maintain a steady supply, w/o resorting to a generic shipped from halfway across the world. I'm so sorry that this has happened to you, Trixy, but it could have been any of us who rely on this messed up American medical system. We recently did a thread with Knitty_Cat in Australia, who reports that 5-ASA rectal foam has been available THERE for several months, whereas we UCers in the U.S. still do not have access to it!!!!!!! This state of affairs seems to leave you with the choices to (1) use the generic mesalamine enemas, (2) ask your gastro to prescribe Cortifoam (10% steroid) if your flare is confined to rectum, or (3) ask about the possibility of using Entocort (budesonide) or Cortenemas (hydrocortisone) if flare is higher up, hopefully for just a few weeks. Let us know how you're doing & what you find out. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily; seem to be back in remission after July flare in descending colon)

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 11/8/2007 11:24 AM (GMT -7)   
TRIXY-- I just looked at the Alaven Pharmaceuticals Website. They have posted a box notification to pharmacists that the "NDC" for Rowasa has just been changed. Hopefully, that means they are on to the distribution problem & will do more to get Rowasa back in the pipeline to market. / Old Hat

Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/8/2007 12:23 PM (GMT -7)   
Old Hat,

I just got a call from Alaven Pharm. They in deed have Rowasa and it is still being produced. There is no release date, but it is already released. He mentioned the part number change and that pharms probably didn't switch it over in their system which is why they show they don't have it. He asked for the numbers to both Pharms that I spoke with last night and is calling them to give them the informatin they need to get it ordered and back in stock. He said not to worry and that he will make sure he works with the pharms to make sure they are ordered. He said he would call me when he finds out which pharm can get it to me the fastest. He said the pharms that I spoke to last night didn't do their due diligence to find out where the product went and made up the stories they told me. He was disgusted and I'm sure he's going to lay into the Pharms when he calls. He apologized for the hassel I've gone through but thanked me for researching this and getting it taken care of. He was very very caring!

GREAT CUSTOMER SERVICE from Alaven. Thanks everyone and I hope this helps someone else.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Ending 5 month remission w/mini-flare :-(


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/8/2007 12:32 PM (GMT -7)   
LOL. Pete from Alaven just called - he explained everything. I'll have my Rowasa tomorrow.

Old Hat, you were right. Rite Aid is stupid in their explanations. What happened is the warehouse that supplied all the Rite Aids in my market took the part number out of the system, so when it showed up discontinued, that's what they told me which isn't the case.

As for Walgreens, the pharm thought I was asking for Rowasa Suppositories, which existed at one time, but have since been discontinued.

Good Grief! Thanks for the fingercrossing Mitz. It worked after all!!!!
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Ending 5 month remission w/mini-flare :-(


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 11/8/2007 12:44 PM (GMT -7)   
Sometimes the intermediaries are such jerks!  devil Rite Aid can really mess things up, including counting out the correct number of pills to put in the prescription bottle. Honestly! Thanks for pursuing this, Trixy, because you've helped all of us by getting after Alaven. Solvay should probably have put a notification out to pharmacists when they sold Rowasa; that was likely where the problem started. And, as Keith mentioned above, Rite Aid recently took over Eckerd, which may have added to their inefficiency. / Old Hat

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/8/2007 2:23 PM (GMT -7)   
Wow! That is awesome customer service! Do you think that guy could help me w/ some issues with getting our floors repaired from a dishwasher flood?! Just kidding. I've been keeping up w/ this post b/c I have felt frustrated and angry for you! I'm glad everything worked out. Think of all the people you helped by doing the reseach you did and made calls!!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 11/8/2007 8:41 PM (GMT -7)   
I'm glad everything worked out and that the Alaven rep gave you such great service! Isn't it like a breath of fresh air when you actually get GOOD customer service from a company, especially after dealing with so many people who are unhelpful and seem uncaring.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/9/2007 4:15 AM (GMT -7)   
I got some today at a local pharmacy no problem I just finished expelling some of the medicine. It works great and doesn't hurt going in or out. Tomorrow night I will go four hours...Not bad for a first night.

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 11/9/2007 11:46 AM (GMT -7)   
Trixy - thanks for all of the info. Now, if I need Rowasa in the future, I'll know what to say if they tell me that they can't get it. It's so frustrating when people just don't care!

Cheers to Alaven for following through :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

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