Welcome to the forum! I hope you find some help here and realize that you are NOT alone!! That's one of the most important parts of this disease... Realizing that there are other people out there like you to talk to and get advice from. When I was first diagnosed I was 14 and I felt like such an outcast. I didn't know anyone who had anything like I did and felt completely alone which made me depressed which I know made my colitis worse. But this forum has helped me in so many ways, even just to vent when I'm feeling down.
My list of foods to avoid is pretty much identical to yours! Spicy food, greasy food, anything with citric acid (especially orange juice and tomato sauce), nuts, chips, popcorn, salad, dairy, fruits with seeds or skins, you name it! We'd probably all be better off if we lived on apple sauce and pudding or something, haha. But after so long of avoiding foods and still feeling sick I just said screw it and started eating whatever I want. I mean, when I'm feeling sick, I avoid these things, but on "good days" I'll jump at the chance to eat a chicken caesar salad, even if I know it will tear me up later. To me, a night or two in the bathroom is worth it for a delicious bowl of ice cream sometimes.
I'm not saying everyone should do this, but I decided that I was sick of letting the disease run my life in every way. I do use discretion however... If I'm hanging out at a friends house, I'm not going to eat those slices of pizza, or if I go out to dinner and am planning on seeing a movie after, I won't order the spicy hot wings because I want to be able to sit through the whole movie! :)
I wish I could offer some advice on how to make things better, but I still haven't found a concrete way myself without having to load up on prescript
ions and prednisone, so I'm in no place to say really. But there are plenty of wonderful people here who have gone through a lot and if anything will at least be sympathetic 'ears' if you need to vent :)
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; oste
openia in hip & lumbar region of spine from long term prednisone useCurrent Meds:
40 mg Citalopram (for depression/social anxiety)
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...