IBS or IBD? Help!

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wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 11/8/2007 5:42 AM (GMT -7)   
Ok everyone, Here I was, thinking I'd been misdiagnosed...when I first joined this forum, I read about symptoms of IBD, and felt as though the first diagnosis of IBS was mistaken.  The smells, is just one I can think of off-hand (I'm still adjusting to new meds, and my mind was already gone, so please bear with me).  Anyway, I've read a few topics this morning, and am confused.  Would anyone mind helping me with the differences?  I think that next week, I'm going back to my new PCP & asking for a 2nd opinion, and new GI. The one I have is nice, but she & I have trouble communicating well.  That's no good as I know we all know.  But in the mean time,  HELP?!  
Also, I'm having bad trouble with my appetite, I have NONE again, and since I recently started on the Asacol, my stomach gets soooooo upset, and I get sooooo sleepy, with the nods, & fog  I only get about 6 hours of mostly clearheaded thinking...will this ease up?  How long?  Everyone's worried I'm depressed or something, and even though that is plausible, I believe it's the new meds...Any input out there?  
Thank you all!
              Kellee
 
 
 
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/8/2007 5:47 AM (GMT -7)   
I'll try to answer some of your questions! I have IBS (w/ d and constipation) and UC. My UC is defined by flares. Flares for me include urgency, a high frequency of bathroom trips, blood and mucuous. My IBS symptoms are d after I eat something I shouldn't (for me fried foods, tomatos). IBS symptoms usually go away after one bathroom trip. Keeping in mind this is all personal experience! I take meds for the UC and none for the IBS. We also have an IBS forum here. If you haven't checked it ou you may want to.

Have you had a colonoscopy to confirm UC? As for the brain fog I had it on pred. but no other meds. You will find lots of people w/ UC complain of exhaustion. I think that is one of the side effects of the disease. I work out regularly and that really seems to help w/ me.

Could the depacote be causing any of teh brain fog and sleey symptoms? I'm fairly familiar w/ bipolar as my dad was diagnosed several years ago.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 11/8/2007 6:33 AM (GMT -7)   
Tab, It could be the depakote, I'm calling PCP physician today about the 2nd opinion, for next week. I'd like these meds to have more of a chance to take effect before seeing new GI. Oh, MY PCP is also new. Yes, I had the colonoscopy, & he said he found UC. But failed to give any info about it...size, where located. Although I can tell you from where the pain is & he did say that that's where the trouble is. I've also been experiencing new & increasing pain on right side in addition to the original left sided pain. Here's another problem..darvocets. I've had chronic back pain due to degenerative arthritis, intrauterine polyps we didn't know I had till it was debilitating for a year, and my old pcp had me on a running supply of darvocets for the pain as it ws well tolerated, and worked well for me with minimum amts needed to do the job. I don't feel addicted. Hwever, I think they masked the symptoms of my UC/IBD for years ( I have gone long periods without needing them & would experience d & cramping,bloody stools, etc.) So, I'm going off them, and now the old symptoms, along with the meds are kicking my behind...exhaustion being one of them..Can you tell that I'm new, and confused by all this...Hahaha! I forgot my original point... I guess I just need to get that 2nd opinion & hope that the new doc & I can communicate...thanks for being here!
              Kellee
 
 
 
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/8/2007 7:51 AM (GMT -7)   
Ha ha! I've had this awhile and I'm still confused half the time! I got a 2nd opinion and a new GI too. I think if you are flaring 6 asacol doesn't sound like enough to me. I take 6 colazal (maintainence drug similar to asacal) while in remission and 9 while flaring. But you are right..you do need to give the meds some time to work. Hang in there! You have found a great place w/ tons of information!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/8/2007 8:08 AM (GMT -7)   
Irritable bowel syndrome is a kind of catch-all term, IMHO, when there's a digestive issue and the doctors really don't know what's going on. The normal movement of the intestines doesn't work as it should, but there is no visible cause, no inflammation. You can read more about it here:

http://www.webmd.com/ibs/guide/irritable-bowel-syndrome-ibs-topic-overview

Inflammatory bowel disease is much more serious. It's thought to be an immune disorder where the body attacks itself, or some unknown invader, causing inflammation, ulceration and bleeding. There are two diseases: Crohn's disease which can strike anywhere in the gastrointestinal tract and ulcerative colitis, which affects only the inner lining of the colon.

http://www.webmd.com/ibd-crohns-disease/default.htm

As Tab has indicated, some doctors believe it is possible to have both conditions simultaneously. My personal opinion is it's more of a continuum, rather than separate conditions. If your doc has seen ulceration during your colonoscopy, it sounds like you do have inflammatory bowel disease, although it could either by UC or Crohn's colitis.


Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/8/2007 11:31 AM (GMT -7)   

Here's an excellent link from the CCFA website...

 

http://www.ccfa.org/about/news/ibsoribd

 

If you have any problems with the link not working just copy and paste into your search engine, it's really worth reading.

 

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


candi75
Regular Member


Date Joined Nov 2007
Total Posts : 25
   Posted 11/8/2007 11:56 AM (GMT -7)   
I also have IBS and ulcerative proctitis. There are two types of IBS. One type you have to run to the bathroom after you eat. Then you are better. The kind I have comes in spells and lasts for about 8 hours and then may reoccur in 2 days. I have intense pain and I have to go to the bathroom repeatedly. Even after the bowel is empty, it continues to spasm, resulting in empty urges. For me, IBS is more painful and intense. A heating pad and stillness are a must. But there is no bleeding with IBS.

wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 11/9/2007 4:24 AM (GMT -7)   
you guys really are a lifesaver!!! Ok, from the way it sounds, and my symptoms, I think I was right the 1st time, It's IBD with UC. I have poked around some of the other sites, and frankly, I keep coming back to you all here! No videos to watch, just some good old honesty & real answers, given from experience. Ok, I know I don't want to just jump on the steroid train just yet, not if I don't need it at this time. I'll go with the 1st plan, and give the meds time to work. I've gone back to three canasa suppositories a day as well.
The best position for me most of the time is laying down, and not jiggling too much. Standing or sitting for any length of time cause great pain & discomfort. The bleeding comes & goes. D can come & go as well. I think the confusion & uncertainty are really hard to wrap your brain around. I seem to be getting better at shoving the pain down at times, and just learn to deal.
              Kellee
 
 Diagnosed with UC Sept. 2007
 
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 11/9/2007 11:17 AM (GMT -7)   
I'm sorry but running to the bathroom after you eat sounds like part of what UC could be doing to you to? I have UC and if I eat something wrong you better know I'm gonna be running to the bathroom....
Diagnosed with UC March 07
 
Medications: Colazal 3 3x a day
                  Prednisone- 40mg
                  Lialda- 2 a day


candi75
Regular Member


Date Joined Nov 2007
Total Posts : 25
   Posted 11/9/2007 11:27 AM (GMT -7)   
Running to the bathroom could be UC or IBS. My mom soils her pants and only has IBS, not UC.
I never had D. until they diagnosed me with IBS also.

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 11/10/2007 8:35 AM (GMT -7)   
Wilidfire have you asked your dr. to check you for Celiac disease as well? Celiac is often overlooked and the symptoms can mimic IBS issues and the damage it does to your body causes a lot of other disorders ie arthritis, "brain fog". If they have not checked it may be good just to be sure you do not have this issue in addition to your UC. Celiac is often overlooked and takes years to get a proper diagnosis. Good luck with your new dr. and I hope you feel better soon.

wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 11/10/2007 8:44 PM (GMT -7)   
thank you, that's a great idea... I hope we all feel better soon...thank you all for being so loving
             
 
Diagnosed with UC Aug. 2007
Diagnosed with Degenerative Arthritis, 2006
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 11/10/2007 9:44 PM (GMT -7)   
now im wondering if i have IBS too
Had stomach problems whole life.. on and off. Could never figure out what it was or why it was going on. about a year and a half ago I went to the dr cuz I was running to the bathroom and it was ruining my life.. my stomach problems were back and wouldn't go away. He referred me to a GI.

After tons of testing and diff. GIs. I had a colonoscopy and it came back as IBD either Crohns or UC... they couldn't decide. I took a dye test and they ruled it as UC b/c they said Crohns always comes up and it didn't. Finally diagnosed with UC March 07

Initially put on Colazal.. didn't really work. Was never really symptom free.. so I guess a ongoing flare for a 1yr + 1/2? Just got over a HORRIBLE flare up and was put on pred and lialda... Seems to be working.
Medications:Colazal 3 3x a day
10/30/07 Prednisone- 40mg and Lialda- 2 a day both in the morning one time only . Haven't started tapering yet.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/11/2007 6:36 AM (GMT -7)   
Wildfire, I'd suggest you ask your doctor for a copy of the colonoscopy report. I've found it helpful to keep copies of my important medical records for myself. That way if I move or change doctors I have them. Also, because I remember better if I've read them, I can better explain my condition to a new doctor if I get sick while away from home.

My doctor automatically gives me a copy of the report, complete with pictures. It's interesting to me to compare the reports over time.
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 11/12/2007 5:33 AM (GMT -7)   
now tha'ts a great idea! Getting copy of report! Her's my problem with this current GI specialist, he never put any specifics into his report. Pics yes. He said, Polyp & UP found exactly where pain is. that's it. May be time for new specialist, eh? Thanks for the advice!
             
 
Diagnosed with UC Aug. 2007
Diagnosed with Degenerative Arthritis, 2006
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder
 


sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 11/12/2007 8:37 AM (GMT -7)   
I do believe I have IBS & UC. I find it very difficult at times to distinguish between them and what is a flare and what isn't. I do suffer from both constipationa and diarrhea. I had a mishap last week and I am still a little off. It can be a very frustrating disease. Hope you feel better.

Stacy
Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
 
 
 

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